News


Jamaican Lupus Warriors Celebrities, Government, Doctors and Media join up to Make Lupus Visible on World Lupus Day

Kingston, Jamaica, May 13, 2022:  On May 10, 2022, Lupus Foundation of Jamaica joined in with Lupus advocacy groups around the world in the nineteenth annual observance of World Lupus Day, in an effort to call attention to and increase support for persons with Lupus in Jamaica.

The Jamaica campaign, dubbed LUPUS LEVEL UP: Make Lupus Visible, leading up to the day consisted of a Social Media campaign, television and radio interviews featuring medical experts and Lupus survivors (termed “Lupus Warriors”), displays at clinics, schools and business places, as well as distribution of purple ribbons and merchandise, with the public being encouraged to wear purple on May 10 in solidarity with those affected.  In addition, members of the Foundation organised walks (dubbed Make Strides for Lupus) and other activities in various locations across the island with images and recordings uploaded to Social Media pages.

The key event was a free mini- Health Fair held at Emancipation Park on May 10, where State Minister in Ministry of Health & Wellness, Juliette Cuthbert Flynn, and reigning Miss Jamaica World Khalia Hall participated in the Opening Ceremony hosted by radio personality Mr Shannon-Dale Reid.  Other participants included President Elect of Medical Association of Jamaica Dr Leslie Meade and Board Members of Lupus Foundation of Jamaica.  Loiette Donegan and Audrey Malcolm, members of the Foundation living with Lupus, respectively said a prayer and shared a poem “My Lupus Strides” prepared for the occasion.  Both participated with the Minister and the Beauty Queen in a symbolic release of purple balloons.

President Dr Desiree Tulloch-Reid expressed gratitude to all those who took time to support the event and other activities. “It is heart-warming to see the outpouring of support being shown by the Government, personalities like Miss Jamaica World, the Medical Community, lupus warriors, volunteers, media and supporters by their presence with us today…It is our hope that greater understanding and continued support promoted by occasions like these will indeed save lives and improve outcomes.”

State Minister Flynn, in officially opening the event, commended the Foundation for it’s efforts. “The work of advocacy plays a vital role in ensuring that systems are in place to give support – connecting those affected with information and care to better their outcomes. I wish to commend the Lupus Foundation of Jamaica for its on-the-ground work in building a community of care for those affected by Lupus.”

Miss Jamaica World Khalia Hall spent quite some time interacting with Lupus Warriors, volunteers and Medical Professionals at the Event where she was seen graciously accommodating photo opportunities and conversations.  She commented, “I have a close family friend with an autoimmune disease and though it is not lupus, I've seen how severely it can impact someone's health and personal life. There definitely isn't enough public awareness around lupus and so I feel grateful to be able to use my platform as Miss Jamaica World to help the Lupus Foundation of Jamaica to raise awareness around this debilitating disease.” 

Attendees received free health checks including blood pressure, blood sugar and cholesterol checks, courtesy of National Health Fund with support of staff of Diabetes Association. Other Organisations participating in the Health Fair included Medical Professional associations like Jamaica Physiotherapy Association, Dermatology Association of Jamaica and Jamaica Kidney Kids who made presentations to attendees.  Mandeville Regional Pathology unit were strongly represented including their head Dr Racquel Lowe-Jones, a board member and one of the Organisers of the event.  She was accompanied by Dr Vitilius Holder of the Southern Regional Health Authority who treated attendees to an interactive Hula Hoop session that ended the day on a positive note.

For those unable to be present, a Live Broadcast by Riddim FM, hosted by Vernon Derby on his new show Spot On, kept listeners fully involved with interviews and conversations with health professionals, Lupus Warriors and volunteers. Sponsors of the event included Seaboard Jamaica, Guardian Group Foundation and National Health Fund.

END

About the Lupus Foundation of Jamaica (LFJ)

Lupus Foundation of Jamaica is a member-based, volunteer-run charitable Organisation in operation since 1984 that seeks to improve the lives and outcomes of persons affected by lupus through information, support, advocacy and research.  The Foundation is seeking support through donations and volunteers to maintain an increasing demand for support services by persons impacted by lupus.  For assistance or to learn more about what the Foundation is doing, visit www.lupusfoundationjamaica.org


  • 1 Mar 2021 10:22 AM | Anonymous

     MARCH 2021 NEWSLETTER

    MY LUPUS STORY
    as submitted through Tell Us Your Story

    -Georgia, 25

    It started with a cold that wouldn’t go away. Then came the swollen lymph nodes, joint pain and unbearable migraines. In September 2017 at the age of 22, after many blood tests, ultrasounds, CT Scans and a biopsy, I was diagnosed with SLE (Lupus) and you could say my life flipped entirely. Most times it feels as if your mind and body are in a constant battle with each other. You want to do a lot, and you think you can, but your body can’t handle it.

    After recovering from a bad flare at the start of the year, I decided to join the Lupus Foundation of Jamaica. I am extremely excited, thankful and grateful for their various platforms of support thus far. Although I wake up every day in pain, to know I’m not alone is the biggest comfort and the love and support I have from my family and friends always keeps me going. Also knowing that with God, prayer and faith I can do anything and get through my day. Today I am hoping my story will inspire others with the disease to share their own. Together we will fight this! Lupus doesn’t define us!

    -Georgia, 25

    COVID VACCINE F.A.Q.'s 


    Am I at higher risk of contracting Covid 19 because I have SLE?

    At this point we do not have information which indicates that Lupus patients are more likely than others to contract covid-19.

    If I contract Covid 19 am I likely to have a more severe course?

    Recently emerging data is now showing that there are some patients with Lupus who may have a more severe course, for example persons having a flare (lupus not under control), those on higher doses of steroids or specific medications that suppress the immune system’s response. This is in addition to the higher risk associated with co-morbid conditions such as obesity, diabetes and hypertension.

    Is there a specific Covid 19 vaccine that is best for persons with lupus?

    Not that we are aware.

    We do not have studies comparing the safety or efficacy of one vaccine in persons with lupus vs the other.

    Will I benefit from the vaccine?

    Due to the risk of severe Covid 19 disease in patients with Lupus, we believe any measure that can mitigate the risk of infection such as a vaccine would be beneficial.

    Are these vaccines safe?

    All vaccines have to satisfy rigorous safety requirements before dissemination. Although we have no direct studies on the vaccines in patients with SLE we still expect the benefits of vaccination in protecting against severe covid-19 would outweigh the risks of side effects which so far appear to be mild in most persons (fever, malaise, headache) and transient.

    Will my medications affect how well the vaccines work?

    The efficacy of the vaccines may be reduced in individuals on some immunosuppressive medication.

    What is the lupus foundation doing to advocate for us receiving the vaccine?

    The Lupus Foundation of Jamaica is in fact lobbying for our Lupus warriors to receive the vaccine as a matter of priority, along with other co-morbid conditions.


     

    UPCOMING EVENTS:

    April 7 (Wed) 
    Ask the Expert Live - LUPUS & BONE HEALTH with Dr Patrice Francis-Emannuel, Consultant Endocrinologist

     

    Merchandise is still Available for purchase

    Show your lupus colours and support when you wear one of our LUPUS Warrior T-Shirts.  Available with 3 sayings, visit our website to get yours, or follow the link below.

    ORDER NOW

    SUPPORT THE LUPUS FOUNDATION OF JAMAICA - many options available online follow link below.

     

    DONATE

    ASK THE EXPERT IS ON OUR YOUTUBE CHANNEL.

    CLICK HERE TO WATCH IT!

    EVENTS

    Ask The Expert Live is Back!

    Lupus and Bone Health
    with
    Consultant Endocrinologist
    Dr Patrice Francis-Emannuel

    Just text back to this number or send us an email at: info@lupusfoundationjamaica.org
    Looking forward to your feedback!

     

    Tell Us Your Story!

    We are collecting stories! LFJ is built on our members and we want to hear from you! We also want to share your stories - of challenges, resilience, overcoming, or just keeping on, as we seek to inspire and encourage other lupus warriors and supporters. What keeps you going? What part has the LFJ played in your journey and what does our LFJ community meant to you? What is your vision for the LFJ for the future?

    Share what is on your mind/heart: send us an email at info@lupusfoundationjamaica.org under the subject "My LFJ STORY" - You can also send us a text on our helpline 876-778-3892 starting with the words: MY LFJ STORY. Bear in mind your comments may be used in upcoming articles/publications. Click here for more details and tips to get started!

    7 Barbados Avenue
    Kingston 5, Jamaica, W.I.
    876-754-8458

    Helpline
    876-778-3892 (Voice/Text/Whatsapp)

    Email: info@lupusfoundationjamaica.org



     

    Learning Centre Hours
    Monday - Friday
    10am-12pm & 1pm-4pm



    FOLLOW US:

     
     

    If you support the Lupus Foundation and would like to add this to your social media pages or email signatures please feel free to copy and paste the icon to the right.

     
    I Support the Lupus Foundation of Jamaica


  • 9 Feb 2021 10:09 AM | Anonymous

    Show your Love in Purple This Valentine's week, send a Purple Love Note to a person living with lupus!  Express your wishes for a person or persons living with Lupus, or someone has supported you on your own journey.  

    Send us your message in text of 30 words or less or a video of 30 seconds or less to info@lupusfoundationjamaica.org, 8767783892 or via Facebook or Instagram messenger.

    We will be posting your messages as post it notes to our social media pages and a create video of members and followers sending their “Purple Love notes to persons  living with Lupus".  Help us celebrate and encourage our warriors and build awareness of Lupus, leveraging the sentiments of Valentine's day to deliver warmth and joy!  

    PURPLE LOVE NOTE
    FROM THE PRESIDENT:

    This February, my purple love note goes out to all the lupus warriors who continue to inspire me with their courage, determination, resilience, patience, grace, and love - that keep them fighting on and encouraging others in the battle. It has been such a privilege to fight alongside you.

    Blessings and big virtual hugs this Valentine's and always.

    Circumstances may cause us to distance but you are only a Purple Love Note away!



  • 1 Feb 2021 11:00 AM | Anonymous

    FEBRUARY 2021 NEWSLETTER

    Supporting Our Warriors!

    Supporting our warriors is what we do

    We are able to stay accessible to our lupus warriors throughout the pandemic, with over 300 direct support contacts with persons across the island providing information about lupus, help finding a treatment centre, accessing member benefits such as pharmacy discounts, counselling and connection with a support network, monthly support group meetings, and distributing care packages to our lupus warriors during the holidays.

    How can you support Lupus Warriors?

    • Show your Support by purchasing Merchandise. 

    • Donations are always needed and always appreciated.

    • Volunteer, Get Involved

    • Tell Us about your Loved Ones Lupus Journey

    PURPLE LOVE NOTE
    FROM THE PRESIDENT:

    This February, my purple love note goes out to all the lupus warriors who continue to inspire me with their courage, determination, resilience, patience, grace, and love - that keep them fighting on and encouraging others in the battle. It has been such a privilege to fight alongside you.

    Blessings and big virtual hugs this Valentine's and always.

    SEND PURPLE LOVE 

    Show your Love in Purple This Valentine's week, send a Purple Love Note to a person living with lupus!  Express your wishes for a person or persons living with Lupus, or someone has supported you on your own journey.  


    Send us your message in text of 30 words or less or a video of 30 seconds or less to info@lupusfoundationjamaica.org, 8767783892 or via Facebook or Instagram messenger.

    We will be posting your messages as post it notes to our social media pages and a create video of members and followers sending their “Purple Love notes to persons  living with Lupus".  Help us celebrate and encourage our warriors and build awareness of Lupus, leveraging the sentiments of Valentine's day to deliver warmth and joy!  

    Circumstances may cause us to distance but you are only a Purple Love Note away!


     

    UPCOMING EVENTS:

    February
    Merchandise Sale!

    February 14 (Sun) 
    Valentine's Day
    - post a Purple Love Note to a Lupus Warrior

    February 18 (Thu) Support Group Meeting (Kingston) - Zoom

    March 3 (Wed)
     Ask The Expert Live

    Mar 31 (Wed)
    Support Group Meeting – Lupus Support Group Western Ja


     

    Merchandise is always Available for purchase

    Show your lupus colours and support when you wear one of our LUPUS Warrior T-Shirts.  Available with 3 sayings, visit our website to get yours, or follow the link below.

    ORDER NOW

    SUPPORT THE LUPUS FOUNDATION OF JAMAICA - many options available online follow link below.

     

    DONATE

     

    ASK THE EXPERT

    March 3 @ 6PM

    Covid-19 Vaccine Update:  Your Questions Answered.

    ASK THE EXPERT - Every First Wednesday of the month from 6 - 6:30 pm

    Tell Us Your Story!

    We are collecting stories! LFJ is built on our members and we want to hear from you! We also want to share your stories - of challenges, resilience, overcoming, or just keeping on, as we seek to inspire and encourage other lupus warriors and supporters. What keeps you going? What part has the LFJ played in your journey and what does our LFJ community meant to you? What is your vision for the LFJ for the future?

    Share what is on your mind/heart: send us an email at info@lupusfoundationjamaica.org under the subject "My LFJ STORY" - You can also send us a text on our helpline 876-778-3892 starting with the words: MY LFJ STORY. Bear in mind your comments may be used in upcoming articles/publications. Click here for more details and tips to get started!

    7 Barbados Avenue
    Kingston 5, Jamaica, W.I.
    876-754-8458

    Helpline
    876-778-3892 (Voice/Text/Whatsapp)

    Email: info@lupusfoundationjamaica.org



     

    Learning Centre Hours
    Monday-Wednesday - Friday
    10am-12pm & 1pm-4pm



    FOLLOW US:

     
     


  • 11 Jan 2021 8:50 AM | Anonymous

    Lupus Foundation of Jamaica is built on our members and we want to hear from you! We also want to share your stories - of challenges, resilience, overcoming, or just keeping on, as we seek to inspire and encourage other lupus warriors and supporters. What keeps you going? What part has the LFJ played in your journey and what does our LFJ community meant to you? What is your vision for the LFJ for the future?

    Share what is on your mind/heart: send us an email at info@lupusfoundationjamaica.org under the subject "My LFJ STORY" - bear in mind your comments may be used in upcoming articles/publications. It can be just a sentence or up to 200 words. Feel free to include a photo or two! You can also send us a text on our helpline 8767783892 starting with the words: MY LFJ STORY

    Here are some examples of sentence starters to get you going:

    • "My name is ... and I live in ...

    • I have been living with lupus since...

    • My Journey has been....

    • I have been a part of LFJ since ....

    • Being a part of LFJ has been... (describe).

    • The LFJ community means a lot to me because ...

    • I would encourage lupus warriors to join/support the LFJ because....

    • In the future I would like to see ..... "

    Looking forward to hearing from you!

    send us an email at info@lupusfoundationjamaica.org
    under the subject "My LFJ STORY"


    Disclaimer: Your video is not guaranteed to be selected due to the limited slots available. Your video might be edited to tighten your story. By submitting your video, you have expressly given the Lupus Foundation Jamaica the permission to use your recording for current and future promotions and awareness events conducted by the Lupus Foundation Jamaica.


  • 11 Jan 2021 8:43 AM | Anonymous

    Ask The Expert Live is our monthly 30 min feature live on Facebook, where we host an Expert to answer all your questions on a specific health area.

    For our first season in 2020 we covered Diet and Lifestyle in Lupus with Dr Michelle Hamilton, Post-Symposium Review Special episode with Dr Desiree Tulloch-Reid, Dr Stacy Davis and guests, and in December Lupus and the Skin with Dr Jonathan Ho, hosted by Dr Asana Anderson.

    If you missed it, you can watch these episodes here on our Youtube page https://www.youtube.com/channel/UCa0tK05i-Y0bQqt32XlHJ8Q.

    Don't forget to Subscribe and check the "Notification Bell" so you can always be informed of new content!

    We are preparing for a New Season of Ask The Expert Live starting February 2021! What topics you would like to have covered?

    Just text back to this number or send us an email at info@lupusfoundationjamaica.org.

    Looking forward to your feedback!


  • 6 Jan 2021 9:03 AM | Anonymous


    JANUARY 2021 NEWSLETTER

    Thank You For Your Support During 2020

    This is just a note to say thank you for the support you have given to the Lupus Foundation of Jamaica during 2020. We truly appreciate your commitment, through your time and means, to improving the lives and outcomes of persons challenged by lupus in Jamaica.

    During 2020, with your help, and in spite of the challenges of Covid-19, we have be able to continue the work, including:

    • Supporting our warriors: We were able to stay accessible to our lupus warriors throughout the pandemic, with over 300 direct support contacts with persons across the island providing information about lupus, help finding a treatment centre, accessing member benefits such as pharmacy discounts, counselling and connection with a support network, monthly support group meetings, and distributing care packages to our lupus warriors during the holidays.
    • Record impact in Lupus Awareness through public education campaigns, including a record-breaking social media campaign with reach of over 25,000 through engaging messages and new programming, as well as hundreds of thousands of potential listeners/viewers through live media during our celebrity-endorsed Lupus Awareness Campaign "Knowledge About Lupus Saves Lives"
    • Providing a range of educational programmes for our health professionals, lupus patients and the public - including World Lupus Day Virtual Open House and virtual Lupus Symposium, a new monthly programme Ask the Expert Live on Facebook and You Tube, expanded educational content on our website and You tube pages
    • During 2020 we logged over 2000 volunteer hours through over 40 active volunteers, and were inspired by creativity, innovation, resilience and kindness among volunteers and members.

    In the coming year, we would like to extend our reach to increase membership across the island, establish support groups in 3 more parishes, facilitate access to special testing for lupus patients that will help save lives and address the special needs of children with lupus.

    We want to thank you again for all you have done to support the cause, as we look forward to your continued support in the Fight Against Lupus!

    You will receive a separate email soon with a summary of your donations during 2020. We invite you to visit our website or Learning Centre or contact us to become a member, donate or volunteer, update your information, or stay abreast of our News and Upcoming Events.

     

    UPCOMING EVENTS:

    Jan 27 (Wed)
    Support Group Meeting Lupus Support Group Western Ja

    February 3 (Wed) 
    New Season Launch Ask the Expert Live - Lupus and the Kidney with Dr Raquel Lowe-Jones

    February 8 - 12
    Pre-Valentine's Day Merchandise Sale!

    February 14 (Sun) 
    Valentine's Day
    - post a Purple Love Note to a Lupus Warrior

    February 18 (Thu) Support Group Meeting (Kingston) - Zoom

     

    Merchandise is still Available for purchase

    Show your lupus colours and support when you wear one of our LUPUS Warrior T-Shirts.  Available with 3 sayings, visit our website to get yours, or follow the link below.

    ORDER NOW

    SUPPORT THE LUPUS FOUNDATION OF JAMAICA - many options available online follow link below.

     

    DONATE

     

     

    NEWS

    Ask The Expert Live is Back!

    We are preparing for a New Season of Ask The Expert Live starting February 2021! What topics you would like to have covered?

    Just text back to this number or send us an email at: info@lupusfoundationjamaica.org
    Looking forward to your feedback!

     

    Tell Us Your Story!

    We are collecting stories! LFJ is built on our members and we want to hear from you! We also want to share your stories - of challenges, resilience, overcoming, or just keeping on, as we seek to inspire and encourage other lupus warriors and supporters. What keeps you going? What part has the LFJ played in your journey and what does our LFJ community meant to you? What is your vision for the LFJ for the future?

    Share what is on your mind/heart: send us an email at info@lupusfoundationjamaica.org under the subject "My LFJ STORY" - You can also send us a text on our helpline 876-778-3892 starting with the words: MY LFJ STORY. Bear in mind your comments may be used in upcoming articles/publications. Click here for more details and tips to get started!

     

    7 Barbados Avenue
    Kingston 5, Jamaica, W.I.
    876-754-8458

    Helpline
    876-778-3892 (Voice/Text/Whatsapp)

    Email: info@lupusfoundationjamaica.org

     

    Learning Centre Hours
    Monday - Friday
    10am-12pm & 1pm-4pm

     

    FOLLOW US:

     

     

    Unsubscribe


  • 1 Jan 2021 10:52 AM | Anonymous

    JANUARY 2021 NEWSLETTER

    Thank You For Your Support During 2020

    This is just a note to say thank you for the support you have given to the Lupus Foundation of Jamaica during 2020. We truly appreciate your commitment, through your time and means, to improving the lives and outcomes of persons challenged by lupus in Jamaica.

    During 2020, with your help, and in spite of the challenges of Covid-19, we have be able to continue the work, including:

    • Supporting our warriors: We were able to stay accessible to our lupus warriors throughout the pandemic, with over 300 direct support contacts with persons across the island providing information about lupus, help finding a treatment centre, accessing member benefits such as pharmacy discounts, counselling and connection with a support network, monthly support group meetings, and distributing care packages to our lupus warriors during the holidays.

    • Record impact in Lupus Awareness through public education campaigns, including a record-breaking social media campaign with reach of over 25,000 through engaging messages and new programming, as well as hundreds of thousands of potential listeners/viewers through live media during our celebrity-endorsed Lupus Awareness Campaign "Knowledge About Lupus Saves Lives"

    • Providing a range of educational programmes for our health professionals, lupus patients and the public - including World Lupus Day Virtual Open House and virtual Lupus Symposium, a new monthly programme Ask the Expert Live on Facebook and You Tube, expanded educational content on our website and You tube pages

    • During 2020 we logged over 2000 volunteer hours through over 40 active volunteers, and were inspired by creativity, innovation, resilience and kindness among volunteers and members.

    In the coming year, we would like to extend our reach to increase membership across the island, establish support groups in 3 more parishes, facilitate access to special testing for lupus patients that will help save lives and address the special needs of children with lupus.

    We want to thank you again for all you have done to support the cause, as we look forward to your continued support in the Fight Against Lupus!

    You will receive a separate email soon with a summary of your donations during 2020. We invite you to visit our website or Learning Centre or contact us to become a member, donate or volunteer, update your information, or stay abreast of our News and Upcoming Events.

     

    UPCOMING EVENTS:

    Jan 27 (Wed)
    Support Group Meeting Lupus Support Group Western Ja

    February 3 (Wed) 
    New Season Launch Ask the Expert Live - Lupus and the Kidney with Dr Raquel Lowe-Jones

    February 8 - 12
    Pre-Valentine's Day Merchandise Sale!

    February 14 (Sun) 
    Valentine's Day
    - post a Purple Love Note to a Lupus Warrior

    February 18 (Thu) Support Group Meeting (Kingston) - Zoom


     

    Merchandise is still Available for purchase

    Show your lupus colours and support when you wear one of our LUPUS Warrior T-Shirts.  Available with 3 sayings, visit our website to get yours, or follow the link below.

    ORDER NOW

    SUPPORT THE LUPUS FOUNDATION OF JAMAICA - many options available online follow link below.

     

    DONATE

     

    NEWS

    Ask The Expert Live is Back!

    We are preparing for a New Season of Ask The Expert Live starting February 2021! What topics you would like to have covered?

    Just text back to this number or send us an email at: info@lupusfoundationjamaica.org
    Looking forward to your feedback!

     

    Tell Us Your Story!

    We are collecting stories! LFJ is built on our members and we want to hear from you! We also want to share your stories - of challenges, resilience, overcoming, or just keeping on, as we seek to inspire and encourage other lupus warriors and supporters. What keeps you going? What part has the LFJ played in your journey and what does our LFJ community meant to you? What is your vision for the LFJ for the future?

    Share what is on your mind/heart: send us an email at info@lupusfoundationjamaica.org under the subject "My LFJ STORY" - You can also send us a text on our helpline 876-778-3892 starting with the words: MY LFJ STORY. Bear in mind your comments may be used in upcoming articles/publications. Click here for more details and tips to get started!

    7 Barbados Avenue
    Kingston 5, Jamaica, W.I.
    876-754-8458

    Helpline
    876-778-3892 (Voice/Text/Whatsapp)

    Email: info@lupusfoundationjamaica.org



     

    Learning Centre Hours
    Monday - Friday
    10am-12pm & 1pm-4pm



    FOLLOW US:

     
     


  • 9 Dec 2020 10:27 AM | Anonymous

    As the year winds down and the holiday season approaches, we want to take this opportunity to say Thank You for your support during this past year. 
    We also want to share some news and upcoming activities we think will interest you! 

    Thanks for making LUPUS AWARENESS MONTH OCTOBER 2020 a big success!

    We would like to say a big "Thank You" to our hard-working volunteers and supporters who helped make our 2020 Lupus Awareness Month public awareness campaign in October a big success!

    Under the theme "Knowledge About Lupus Saves Lives" we had many highlights:

    • Endorsement of our Lupus Awareness campaign by Miss Jamaica Universe Iana Tickle-Garcia and the National Health Fund - increasing our impact and reach of our mesage
    • Unprecedented Social Media Campaign with over 20,000 persons reached and 1000% increase in followers on Facebook, Instagram and Youtube
    • Launch of new social media programming including Your Story Fridays and Ask The Expert Live
    • Nine Live Media Appearances by our volunteer health professionals including television features on popular programmes TVJ Smile Jamaica and CVM Inspire Jamaica and several radio features promoting lupus awareness
    • Launch of our new line of designer Branded Merchandise with celebrity endorsement and online purchase options
    • Successful first virtual staging of Laps for Lupus Awareness with over 200 attendees
    • Successful first virtual Staging of Annual Lupus Symposium with record participation - 600 registered participants including health professionals and patients and hundreds more on livestream internationally and 100% positive reviews!

    The impact of this effort on awareness and knowledge of lupus will indeed save lives!  

    With your support we can continue this work and do even more in the Fight Against Lupus!

     

     

     

     

    If you didn't get a chance to send us your pledge payment for Laps For Lupus Awareness you can do that right now!

    Donate

     

    Support our 555 HOLIDAY GIVING CAMPAIGN!

    Donate

    We are on a drive to raise $500,000 JMD ($5,000 USD) to continue our Support Programmes and to distribute holiday gift/care packages to 200 lupus warriors during the holidays!  

    Its Easy! Here's how you can help:

    • DONATE $555JMD/$5 USD(or higher) conveniently on our secure donation page, electronic transfer or in person (its tax deductible)
    • INVITE YOUR FAMILY & FRIENDS to donate sharing our Social Media invitations and messages (555 persons giving $555 will take us half way there!) 
    • SPONSOR A GIFT for a Lupus Warrior (special pricing available for members - be a Secret Friend)

    Here are some OTHER GREAT IDEAS for supporting LFJ this year!

    • Support LFJ in your holiday giving!  Instead of giving a present to your family member or friend, give a donation to the LFJ on their behalf!  Let them know your "gift" with our branded Holiday cards and stickers.  After all, now more than ever, it's far "more blessed to give than to receive"! 
    • Purchase 2021 Calendars or other branded merchandise (see our selection of T-shirts, masks, mugs here)
    • Support our Can Drive: take an LFJ collection can (or two or three) to your workplace, school or family and support our holiday Can drive, with stickers for donors giving $500 or more
    • Connect Us with a Caring Corporation: Suggest your Employer or other Company you are connected with to join our LFJ Caring Corporations family by giving a Tax Deductible Donation to the LFJ 

    VOLUNTEERS ARE NEEDED to design, prepare and distribute stickers, cards and gift packages.   Get in touch with us today!

    Don't miss these UPCOMING EVENTS!

    Don't miss these fast upcoming Events:

    • GIVING TUESDAY December 1, 2020 10:00 am: December 1 is International Day of Giving 2020 and LIVE LAUNCH of our 555 HOLIDAY GIVING CAMPAIGN 
    • ASK THE EXPERT Live Wednesday December 2, 2020 6 pm:  Our guest expert Consultant Dermatologist/Dermatopathologist Dr Jonathan  Your Skin and Lupus: Your Questions Answered live on Facebook and Youtube- start sending your questions! (email info@lupusfoundationjamaica.org, text 8767783892 on on live chat)
    • ANNUAL HOLIDAY SOCIAL Virtual Edition Thursday December 10, 2020 6 pm  - Join fellow members, volunteers, donors and special guests as we give thanks and enjoy fellowship, special features and givaways during this special Zoom event.  Not Yet a Member? Join up right now!

    May you stay safe, healthy and blessed!

    Désirée Tulloch-Reid

    President

    LUPUS FOUNDATION OF JAMAICA

    You Are Not Alone


  • 3 Dec 2020 11:29 AM | Anonymous

    On December 1, 2020 we launched our 555 Holiday Giving campaign to help raise funds to provide care packages for lupus patients during the holidays and continue our support programs  in the coming year.  We are aiming to start distributing packages on December 10, 2020.

    If 555 persons give $555 JMD (or $5 USD) we'll be halfway to our goal!

    Jamaica has one of the highest rates of #lupus worldwide. The #covi̇d19  pandemic has significantly impacted our patients with many experiencing financial difficulties, health issues, depressive symptoms and social isolation. 

    Your donation today will ensure the continuation of support programs, and advocacy provided by the Lupus Foundation of Jamaica to help our #lupuswarriors survive and thrive in these unusual times.

    Donate today to the Lupus Foundation of Jamaica.  

    Visit our website >> www.lupusfoundationjamaica.org/donations

    Or 876-754-8458, or 

    info@lupusfoundation.org


  • 25 Oct 2020 1:47 PM | Anonymous

    Kingston, Jamaica October 25, 2020. Since the Covid-19 pandemic several issues relating to lupus have been of urgent concern to patients and medical personnel with implications for the society at large. Jamaica has one of the highest rates worldwide of this potentially life-threatening autoimmune disease. Lupus Foundation of Jamaica, a local member-based group, have brought together local and international experts to ensure that these issues stay on the radar and are fully addressed at a free virtual Lupus Symposium to be held on Sunday Nov 1, 2020 from 10 am to 2:30 pm.

    Among these issues has been widespread concern that the disease itself, or even its treatments which suppress immune function, may place lupus patients in a vulnerable group for the potentially deadly coronavirus. In contrast, drugs used in treating lupus, such as steroids and hydroxychloroquine have been utilised widely in treatment of Covid-19, triggering shortages of the drugs in recent months for many patients. Safety issues surrounding use of these drugs have also been circulating in the news media.

    Perhaps predictably, the daily challenges faced by patients in coping with this chronic condition, also seem to be compounded during the Covid-19 Pandemic. The Foundation recently surveyed its members to better understand its impact on various areas from work or school disruption, financial issues, mental health and relationships to health care access and will also be having these addressed during the Symposium.

    Dr Desiree Tulloch-Reid, Consultant Rheumatologist specialising in Lupus and President of the Foundation spoke about the objectives: “We felt it was important that we address these complex issues surrounding lupus in the context of the Covid-19 pandemic as comprehensively as possible, both at the scientific and medical level as well as the more practical areas, always with the patient at the centre. We hope the information gained here will help us all look toward a positive future for lupus patients in Jamaica and worldwide.”

    This year’s Lupus Symposium, is to be streamed live on two social media platforms, and will be accessible to the public free of cost, thanks to sponsorship by the National Health Fund and other private entities. Under the theme Back to the Future: Embracing New Normals in Lupus Management, Research and Life,the event will feature local and international speakers covering topics such as Lupus and Covid-19 Pandemicas well as latest developments in Precision Medicineand Patient-Centred Research. A diverse panel of experts will also share on The Way Forward: Life with Lupus During and After Covid19and will address topical matters of health care access, work safety and opportunities and mental and social health for persons with lupus. A variety of special features such as short films, interactive question and answer and even music will further contribute to maximal participant engagement.

    Dr Roberto Caricchio, chief of Rheumatology at Temple University and Head of the Temple Lupus Programme, has been at the forefront of the international effort to understand the complexities of the immune system’s behavior in lupus as well as in Covid-19 infection. He was pleased to support the Symposium, in which his former mentee Jamaican Rheumatologist Dr Asana Anderson is also participating. Of his involvement in the effort he said “I feel empowered and humbled at the same time; empowered by the unprecedented world collective effort of physicians and scientists to end the COVID-19 pandemic, and humbled by the privilege I have to be part of it.”

    Prof David Isenberg, of University College London, who will be speaking on Precision Medicine in Lupus, is considered one of the doyens of lupus treatment and research internationally and author of a publication on the same topic this year in the highly-acclaimed medical journal the Lancet. He is also no stranger to Jamaica and the work being done here by local specialists. "I'm truly sad not being able travel, from a rather locked down UK to Jamaica, but delighted to be taking part in this exciting program. I'm keen to share with you some of the intruiging  developments in the treatment of SLE as we  move from an era of therapeutic 'serendipity to (immunologic) sense".

    Jamaican specialists Dr Taneisha McGhie and Dr Raquel Lowe-Jones, will also be in the line-up, presenting their international work in the field, supported by two former LFJ presidents, Rheumatologists Dr Karel De Ceulaer and Dr Stacy Davis.

    About LFJ:

    Lupus Foundation of Jamaica, established in 1984, is a member-based, volunteer-run, charitable organisation dedicated to improving the lives and outcomes of Jamaicans affected by lupus through information, support, advocacy and research. The Foundation has approximately 169 active members, who were recently surveyed in an effort to better understand their needs during the Pandemic and how to address them.

    The annual Lupus Symposium has been a flagship event for the LFJ for over 20 years, and follows a month-long public awareness campaign in October, Lupus Awareness Month. The event brings together experts in the field to present the cutting edge in Lupus treatment and research as well as address practical issues affecting those living with lupus. This event provides both Continuing Medical Education for a range of health professionals as well as information for patients and the public in a shared learning environment. Although necessitated by the circumstances of the Covid-19 pandemic, the switch to a virtual format has attracted record attendance across Jamaica, as well as regionally and internationally through live streaming on multiple platforms and convenient online registration.

    The public is invited to visit the Foundation’s website, lupusFoundationJamaica.org or social media pages to register for the event, or for more information, to join, volunteer or donate.

    ####

    For more information on this topic, you may contact Desiree Tulloch-Reid, 8765744954 or email rheumjamaica@ymail.comor info@lupusfoundationjamaica.org.


    https://www.news-medical.net/news/20201019/Temple-researchers-identify-criteria-to-predict-cytokine-storm-in-COVID-19-patients.aspx

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7007776/

    https://pubmed.ncbi.nlm.nih.gov/29652656/

    International perspectives on Patient Involvement in Clinical Trials in Nephrology | Request PDF


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