CALL FOR VIDEOS: Share Your Story for World Lupus Day

25 Apr 2021 3:20 PM | Anonymous

On May 10, 2021, LFJ will join in with lupus groups across the world as we observe World Lupus Day 2021 under the theme MAKE LUPUS VISIBLE.  We will be leveraging community and media partners, the power of social media  as well as staging of a special free online event Unmasking The Many Faces of Lupus.  

You can help the effort by sharing your story as a person living with lupus:

Just record a short video/videos, 30 seconds or less for each one or more of the following topics:

  • Introduce yourself, eg,  "I am -------, I am ------- years old, and I have lupus"
  • When/how were you diagnosed?
  • How are you doing now?  What is your strategy to survive or thrive with lupus?
  • How long have you been a member of the LFJ? Would you encourage other lupus warriors to join, and why?

You can make your own recording with your camera or smartphone Send in your recording to by April 30, 2021.

Having difficulty?  We can help you!  Just visit the Lupus Foundation Learning Centre (7 Barbados Ave) on Monday April 26, 2021 or Thursday April 29 between 11:00 am and 2:00 pm and one of our volunteers can assist you with the recording.

Disclaimer: Your video is not guaranteed to be selected for the programme due to limited time slots available. Your video might be edited to tighten your story.  By submitting your video, you have expressly given the Lupus Foundation Jamaica the permission to use your recording for current and future promotions and awareness events conducted by the Lupus Foundation Jamaica.


If you are doing your own recording, please note the following tips for a great video:

Instructions on recording video with a smartphone. at home without any equipment


Other tips

Other Instructions

1. Do not do a selfie holding your camera with your hand. The footage can often be shaky and jarring to the viewer's eyes.

2. Film in a quiet place away from loud noises like traffic, dogs barking or people shouting.

3. Ensure your face is lit by turning on a lamp and pointing it toward your face or filming facing a window.

4. Do not film yourself far away from the camera. You will sound better the closer you are to the video.

5. Read the questions and familiarize yourself with your answers before recording.

6. Ensure the video is in focus so we can see you clearly.

7. Lastly, relax, be yourself and speak from the heart.

Miss Jamaica World Khalia Hall to join with Government and Medical Societies to support World Lupus Day Observance

Khalia Hall, the reigning Miss Jamaica World, is demonstrating the philosophy of Beauty with a Purpose as she lends her time and influence to the cause of Lupus Awareness.

Miss Jamaica World is one of several well-known personalities that have endorsed the efforts of the Foundation over the years to promote awareness about Lupus.  “I feel grateful to be able to use my platform as Miss Jamaica World to help the Lupus Foundation of Jamaica to raise awareness around this debilitating disease.” 

On May 10, Lupus Foundation of Jamaica will be joining in with lupus groups across the world in observance of  World Lupus Day 2022 under their own theme LUPUS LEVEL UP: Make Lupus Visible.  According to Dr Desiree Tulloch-Reid, President, the campaign will have an Island wide reach through media interviews and promotions, poster displays, a social media campaign and Awareness walks dubbed “Make Strides for Lupus” across the Island and will culminate in a World Lupus Day Ceremony and mini-health fair at Emancipation Park, New Kingston, on May 10, 2022.  “We will be engaging all our members, supporters, media partners, Government, community organisations, the public at large and all our online and social media to increase awareness of lupus, specifically this year emphasising the impact of lupus on the body’s organs.”  

Ms Hall will be supporting the LUPUS LEVEL Up campaign by a video endorsement for social media and being photographed in the purple T-shirt bearing the Campaign theme.  She will also attend the Foundation’s key event, a free mini-health fair at Emancipation Park, and take part in an official Opening Ceremony at 12:00 pm in tandem with the  Minister of State in the Ministry of Health & Wellness, Hon Juliette Cuthbert-Flynn who will declare the event open.

Also present at the free event at Emacipation Park will be representatives of several health Professional Associations including Medical Association of Jamaica, Dermatology Association of Jamica, Pharmaceutical Society of Jamaica and Jamaica Physiotherapy Association as well as Mandeville Regional Hospital Nephrology Unit, who will interact with the public and provide health talks and demonstrations.  National Health Fund will provide free health screening in tandem with the Diabetes Association of Jamaica.  A live broadcast on Riddim FM 102 with host Vernon Derby will also feature conversations with health professionals, volunteers and persons living with Lupus, as well as reports from participants in awareness walks and other activities across the Island.

The public is invited to wear purple on Tuesday May 10 in solidarity, to participate in local activities and make donations to the Foundation towards support services for persons with Lupus. Further information is available at the Foundation’s website or by contacting 8767548458.

7 Barbados Avenue
Kingston 5, Jamaica, W.I.

876-778-3892 (Voice/Text/Whatsapp)


Learning Centre Hours
Monday - Friday
10am-12pm & 1pm-4pm

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