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  • 15 Jun 2020 12:51 AM | Anonymous

    Five Finger Fundraising Campaign 




    Sponsor Letters 

    If you have one or more potential sponsors, please contact us by WhatsApp, email or telephone with the details and we will create the sponsor letter on your behalf.



    WhatsApp Message Forwarding 

    You can create a message with the particulars of your campaign and forward that message to up to 250 of your contacts and friends. Check out our sample message script below. 



    Facebook Posting and Sharing - 

    Create a facebook post inviting your friends to support your campaign and ask them to share with their friends.  Please see example of Posts below.




    Matching Funds Campaign 

    If you work for an organization of a dozen or more employees, you can ask your employer to join in a matching funds campaign.  If approved, you would make a request of your fellow employees and your company would match the amount collected by using the agreed upon formula. The LFJ will provide the letter to your employer.  See our contact info below.



    Personal Donation Onetime or Recurring

    You can make a pledge of $500 or more JMD one time or monthly recurring payment and our system will remind you when its due.  See the details below.



    Contact Information:

    Email: info@lupusfoundationjamaica.org

    Telephone: Office 876-754-8458 or 876-778-3892 (Voice/Text/Whatsapp)

    Campaign Information

    (1)  To request a sponsor letter - email or call us with the name and address of the potentical sponsor

    (2,3)  Scripts for your WhatsApp and Facebook campaign messages follow below.

    (4)  For matching Funds - Email or text us with the name of the company, the name of the manager, his or her title along with the company address.  Our letter will detail how the campaign works along with the start and end dates.

    (5) Do donate, go to our website, click on donate and either use one of the donation buttons or make a payment from your bank account. All payment information has been posted on our Donate page. Click Donate now. Also, let us know how much you plan to donate so that we can project our income.

    You are not alone

    Lupus Foundation of Jamaica


    WhatsApp sample script

    Hi there! This is (Your name).  You are a valued member of my friends and family network so I writing to let you know that I am a member of the Lupus Foundation of Jamaica (LFJ) because many of my friends and family has been impacted by Lupus.

    I am participating in a fundraising campaign to ensure that our programs and services continue to be available to existing Lupus patients and to newly diagnosed persons.   The LFJ is a member sponsored charity and donations have slowed due to Covid-19.

    With your gift of $500 JM or $5 US or more by June 30th 2020, we will reach our goal of $4 million dollars this year.

    Your kind consideration is greatly appreciated.  Please text me to say "I am in", so I can keep track.  You can click this link to donate securely online right now.  If you are paying online please use the Add Note section of the payment window to say: On [your name]'s behalf. 


    Facebook sample script

    Hi Friends:

    You are a valued member of my friends and family network so I writing to let you know that I am a member of the Lupus Foundation of Jamaica (LFJ) because many of my friends and family has been impacted by Lupus.

    I am participating in a fundraiser to ensure that our programs and services continue to be available to existing Lupus patients and to newly diagnosed persons.   The LFJ is a member sponsored charity and donations have slowed due to Covid-19.

    With your gift of ($500 JM $5 US) or more by June 30th 2020, we will reach our goal of $4 million dollars (JM) this year.

    Your kind consideration is greatly appreciated.  Please message me to say "I am in", so I can keep track.  You can click this link to donate securely online right now.

    If you are paying online please use the Add Note section for the payment window to say:On [your name]'s behalf. 


  • 18 May 2020 8:51 AM | Anonymous

    LUPUS FOUNDATION OF JAMAICA

    GENERAL MEMBERS MEETING

    July 30, 2020 06:00 PM Jamaica


    Join Zoom Meeting

    https://us02web.zoom.us/j/89367590000?pwd=L3F5Q3YvOUcvWWdFcDJ2dWNFcWhoZz09


    Meeting ID: 893 6759 0000

    Password: 598947

    One tap mobile

    +16465588656,,89367590000#,,,,0#,,598947# US (New York)

    +16699009128,,89367590000#,,,,0#,,598947# US (San Jose)

     

    7 BARBADOS AVENUE (By pre-arrangement)

    Purpose:

    • ·        To receive, consider and adopt the Annual Report
    • ·        To appoint the members of the Executive Board
    • ·        To vote on resolutions relating to updates of Articles of Incorporation

    Please note the following:

    NOMINATION INFORMATION AGM_20200730.pdf

    AGM_Letter_20200604_final.pdf

    VotingInstructions_LFJAGM_20200605.docx

    Proposed Resolution_20200713dtr_formatted[4215].pdf

    DOC-Article of Association20190404 (1).tiff

     Voting Form LFJ AGM 2020_20200616.pdf

    LFJ President's Report 20200526.pdf

    Draft_AGM_Letter_20200604_final.docx

    Minutes of AGM held 31.1.19.docx

    Statement of Revenues and Expenditures - Lupus Foundation Feb 2019.pdf

    • ·        Extended Nomination period closes June 17, 2020 at 4 pm
    • ·        Voting will be accommodated via electronic voting platform on the website as well as by paper ballots provided.
    • Direct voting prior to the AGM will be open from Mon July 28 @ 9 am to Wed July 30, at 12 pm  electronically (via website) or using paper ballot (in person or emailed).  
    •   All other voting including electronic voting will take place, and be tallied, during the meeting.
    •   Only members in good standing as of Sunday July 29 @ 7 pm will be eligible to vote.
    • ·In-person attendance is limited and requires registration through the office at (876) 754-8458 or info@lupusfoundationjamaica.org.  (Do not attempt to register via the Help Line.)
    • See Voting Instructions document for information on voting by proxy.

    Notice of this meeting, with supporting documents, was sent out by mail on June 8, 2020 to all registered members in good standing as of May 27, 2020, in accordance with existing Articles of Association.

    Nomination and Voting instructions and forms, Meeting agenda, Nominee List and Resolutions are all available below:

    The final Nominee List posted on Mon June 29 prior to opening of voting.

  • 9 May 2020 9:34 PM | Anonymous

    The World Lupus Federation conducted a global survey on how lupus affects physical function and quality of life. The survey consisted of 11 questions and responses were submitted from April 10 to April 26. More than 4,000 people responded to the survey with over 3,500 complete responses. Participants from more than 70 countries completed the survey. The survey results highlight that lupus impacts physical function and quality of life. Topline results of the survey include:

    • Nearly 7 in 10 participants responded that lupus impacted mobility, including 1 in 10 that needed a cane or another apparatus. Overall, younger people with lupus report being less impacted by physical functioning or social impact compared to older people with lupus.
    • Nearly 1 in 5 participants responded that lupus significantly affected (“limited a lot”) their ability to perform childcare or care for your family. 3 in 5 participants responded that lupus in some way limited their ability to go up and down stairs at a normal pace.
    • Nearly 3 in 4 participants responded that they are physically less active than other persons their age who do not have lupus.
    • Nearly 9 in 10 participants responded that lupus interfered with normal social activities with family, friends, neighbors or groups. Nearly 4 in 10 responded that lupus interfered “quite a bit” or “extremely.” 
    • Nearly 9 in 10 participants responded that pain interfered with normal activities, including both work outside the home and housework. 3 in 10 responded that lupus interfered “quite a bit” or “extremely.”

    Overall, people with lupus who report their lupus diagnosis taking two years or more experience higher physical burden and social impact than those who receive their diagnosis within 12 months. Those with skin lupus (DLE or other) are less affected physically, whereas those with SLE experience highest impact, particularly with pain. One thing all people with lupus seem to experience, despite different types of lupus, is difficulty getting out of bed.

    Survery results can be found here.
    Source: https://worldlupusday.org/2020/05/07/world-lupus-federation-global-survey-2020-topline-summary

  • 6 May 2020 4:41 PM | Anonymous

    World Lupus Federation issues global report for World Lupus Day highlighting the life-altering effects of lupus and the challenges people with lupus face every day.

    (Washington DC) Almost half (43%) of people living with lupus responding to a 2017 poll indicated that they worry the most about physical inactivity and social isolation due to the debilitating effects the autoimmune disease has on the body. Nearly half (47%) of the participants also felt that the impact lupus has on daily living is most misunderstood by their physician, while almost one-third (30%) believed that the emotional impact is most misunderstood.Almost half (47%) of those who responded to the World Lupus Federation (WLF) poll indicated they want better management and treatment options available to them through their physician.

    Only one treatment developed specifically for lupus has received regulatory approval since the 1950’s.These opinions are included in the “Lupus Knows No Boundaries e-Report,” developed through a collaboration between the WLF GlaxoSmithKline (GSK) and for World Lupus Day (May 10).

    The report brings together firsthand experiences of people with lupus, their advocates and those who treat them, to tell the real story of lupus, highlight-ing the ongoing physical and emotional needs of those who are affected by this incur-able disease. The full report is available online at worldlupusday.org.

    “I first came to know lupus through my childhood friend, Lucy Vodden, about whom the song Lucy in the Sky with Diamonds was written,” said Julian Lennon, photographer, author, musician, philanthropist and global ambassador for the Lupus Foundation of America. “It was Lucy’s struggles that opened my eyes to how devastating the burden of lupus is on millions of individuals and their families.”

    Shannon Boxx was a member of the United States women’s national soccer team, winning three Olympic gold medals before her retirement in 2015. But for most of her career, she was secretly carrying the burden of a lupus diagnosis. “I decided to speak publicly about lupus because I was tired of hiding it. I was at a point in my career where I knew I probably wasn’t going to play much longer and I felt I had a real responsibility, being in the public eye, to talk about lupus and bring more awareness,” said Boxx.

    Public awareness of lupus remains stubbornly low, contributing to public misunderstand-ing and misconceptions about the disease. A 2016 global opinion survey* found that over half of the respondents (51%) were unable to identify the physical complications associated with lupus and more than a third (35%) did not even know that lupus was a disease.

    The World Lupus Federation, a global coalition of lupus patient groups, is working to raise the public profile of the disease.

    “We’re calling for everyone to unite and take action on behalf of those affected by lupus,” said Sandra C. Raymond, President & CEO of the Lupus Foundation America which serves as the Federation’s Secretariat. “By shining a light on lupus we can ensure that friends and family, healthcare professionals, employers, government officials, health insurers and pharmaceutical companies are aware and informed of the many and varied challenges that people with lupus face.”

    “The e-Report and Twitter Poll findings show that there is more that can be done to raise awareness, understanding and prioritization of this debilitating disease and to give patients the confidence to speak up about the impact of their symptoms,” said Dr. Alex Liakos, Global Medical Affairs, GSK. “At GSK, we are delighted to have been able to collaborate with the World Lupus Federation and look forward to continuing to support the needs of those living with lupus in future campaigns.”

    “It’s our responsibility to get involved and do whatever we can to help fight this unpredictable and misunderstood disease,” said Julian Lennon. “It is my goal to keep fighting and bringing attention to lupus so we can raise the money needed to develop better treatments, provide support to people affected and fund the research that someday will bring an end to lupus and its brutal impact on people’s lives.” 

    Source: https://worldlupusday.org/news/inactivity-isolation-and-impact-on-daily-life-are-top-concerns-of-people-with-lupus/
  • 26 Apr 2020 4:19 PM | Deleted user

    • Global Survey (Closes Apr 27): This year’s global survey will focus on how lupus impacts physical function and quality of life. We encourage you to take the survey and to share the link with other persons who have lupus.  One of our plans this year is to promote the importance of low impact exercise for people living with lupus.   We will be sharing those resources with you in the upcoming weeks.


  • 16 Apr 2020 10:22 AM | Deleted user

    COVID-19 

    We acknowledge that everyone is worried about corona. What is it and what do we know about it?  Covid-19 is a newly emerged virus from the corona family that has been spreading in some parts of Asia and more recently in Europe with a few mostly imported cases being documented in cities in the USA the Caribbean (two cases confirmed in Jamaica) and has been declared a pandemic by the WHO. 

    Presentation

    It causes flu-like symptoms that in some cases (less than 5 %) have resulted in respiratory (lung) complications that in some cases have been fatal.  However, it has been noted that a greater proportion of the more severe cases have been in older persons and those with chronic conditions including diabetes, heart disease, high blood pressure or respiratory diseases

    While we do not know if any lupus patients have been affected, we know generally that persons with lupus are more vulnerable to infections due to the disease itself and well as some of the medications used to control it. 

    What should you do?

     

    a)  Avoid Infection

    Make every precaution to avoid infection:

    ·        Wash your hands frequently with soap and water (palm, between fingers and back of hand for at least 20 seconds, especially after going to the bathroom, before eating, and after blowing your nose, coughing or sneezing. If soap and water are not available, use an alcohol-based hand sanitizer with at least 60% alcohol. Avoid close contact with people who are sick, and stay home when you are sick.

    ·        Sensitise your household members and co-workers about the above as this will also help to reduce your risk of infection.

    ·        Travel internationally only when necessary and with proper assessment of the risk in the area and with the appropriate precautions.  Be advised by your doctor.  If booking some time forward, take out travel insurance in case you need to reschedule.

    Managing Lupus Medications during Covid-19 

    It is important to know how to manage your meds.

     

    ·        Do not stop your medications because you are worried about getting coronavirus.  Being on steroids and medicines known as "immunosuppressives" like azathioprine (imuran, Azoran) or mycophenylate mofetil (cellcept) can lower your body's defenses to viruses.  On the other hand having a flare of your lupus disease also lowers the defenses, with persons with lupus having the highest risk of infection and succombing to infection, during a flare.  So stopping these medicines may not help your situation.  Also you might end up needing even higher doses of medicines including steroids to get back under control.

    ·        On the other hand, should you develop an infection or suspected infection, some of your medications may need to be adjusted or stopped.  Your doctor will need to advise you and closely monitor your lupus in this case.

    ·        Take hydroxychloroquine even if you are sick.  Hydroxychloroquine is one of the medications recommended for lupus patients to help keep lupus stable (prevent flares) Hydroxychloroquine is not "immunosuppressive" ie lowering ones defenses and does not need to be stopped during an infection.  In fact it is being tried by some doctors in asia for covid cases which could potentially affect supply, so make sure you are properly stocked.

     

    Know the signs so you can recognise them in yourself or others.

    Covid-19 virus can cause mild to severe respiratory illness

    Symptoms can include

    ·        fever

    ·        cough 

    ·        shortness of breath

    and may occur 2-14 days after exposure (contact with the person or surface that transmitted the virus)

    Seek medical advice 

    ·        if you develop symptoms, and have been in close contact with a person known to have COVID-19 or 

    ·        if you live in or have recently been in an area with ongoing spread of COVID-19.

     

    Educate others.  Preventing spread if everyone's business:  

    Avoid spreading the virus in the same way you avoid contracting the virus

     wash your hands often with soap and water for at least 20 seconds especially after blowing your nose, coughing or sneezing; going to the bathroom and before eating or preparing food

    ·        avoid touching your eyes, nose and mouth with unwashed hands

    ·        stay home when you are sick

    ·        cover your cough or sneeze with a tissue, then thow the tissue in the trash

     

    References

    cdc.com

    who.int

    jis.gov.jm

    moh.gov.jm

     

    Helpful links:

     

    https://www.cdc.gov/coronavirus/2019-ncov/about/share-facts.html

    hhttps://jis.gov.jm/jamaica-and-the-coronavirus/

    https://www.who.int/news-room/q-a-detail/q-a-coronaviruses

     Manpower and Maintenance Service Limited’s Workshop - CORONAVIRUS: FACTS NOT FEAR-FIGHTING BACK

    Top of Form

    Bottom of Form

     


  • 12 Apr 2020 2:43 PM | Anonymous

    Learning Centre Closure

    We want to let you know that our Lupus Learning Centre at 7 Barbados Avenue will be closed to the public for the remainder of the month of April i.e.: April 14 - 30, 2020.  We will keep you updated on re-opening and hours as soon as possible.

    Continuing Services

    Please note that we will be continuing to serve you our members.

    • We will be monitoring our email info@lupusfoundationjamaica.org and social media (Facebook and instagram), as well as voicemail periodically.  
    • For urgent matters requiring assistance, Members may also contact our help line (call, text or whatsapp) at  (876)778-3892.
    • Online Counselling Services are available to members on an appointment basis, courtesy of our Health Counsellor, Rev Neilson Waithe.  Email or message us to book your appointment.
    •  We invite you to monitor our website for news and updates.

     Reminders

    • You are encouraged to keep your membership up-to-date to continue to access your member benefits.  You can check your membership status and update your information here.

    • We are able to receive your membership dues and donations via online transfer to our account.

    • Funds are needed at this time to sustain our operations, particularly as many of our planned fundraising efforts are on hold at this time. Consider supporting us as a sustaining donor though a small monthly contribution, or contact us so we can support your fundraising venture.  Every bit counts!


  • 25 Mar 2020 9:01 AM | Deleted user

    Dear Members and Friends

    There has been growing concern among members of the community who may be anticipating or having trouble obtaining their prescription drugs, particularly hydroxychloroquine (Plaquenil, HCQS, Apo-hydroxy), following recent reports of the drug's possible use for treating Covid19 infection.  It should be noted studies are still underway of this drug and several other medications being tried to ameliorate the effects of severe covid19 infection and are still not conclusive.

    What is hydroxychloroquine and why its use for lupus?

    1. Hydroxychloroquine was originally a developed for the prevention and treatment of malaria but now is most widely used for the control of a variety of inflammatory/autoimmune diseases such as rheumatoid arthritis and lupus.  
    2. For persons with lupus, hydroxychloroquine is considered an essential drug recommended for all lupus patients, due to its important role in stabilizing disease and preventing flares.  Flares in lupus are periods of increased disease activity associated with uncontrolled inflammation that can lead to increased symptoms, risk of organ damage or sometimes life-threatening complications.  
    3. Hydroxychloroquine also lowers the risk of cardiovascular events such as stroke, heart attack and uncontrolled clotting problems that are particularly common in lupus patients.  
    4. Used alone or in combination with other drugs, it has a unique and essential role in in lupus treatment. 

    Managing Your medications during the Covid19 outbreak

    1. We recognise that lupus patients are considered to be among the vulnerable group for severe Covid19 infection both as a result of the disease itself and the immunosuppressive drugs often required for controlling the disease.  
    2. It is not advised, however, that patients with lupus stop their medication due to fear of contracting Covid19 disease, because stopping your treatment can lead to a flare of the lupus.  Should a flare occur, in addition to the risk of organ damage, the risk of infection may become even higher. Remaining on your medications including hydroxychloroquine helps prevent such flares.  
    3. In the case of Covid19 or other infection, steroids and some immunosuppressive medications may need to be adjusted as instructed by your doctor; however, hydroxychloroquine is not considered immunosuppressive and can usually be continued in the presence of infection.  

     

    Ensuring Your Supply of Medication

    In the presence of the outbreak, the Foundation has advised its members to take maximum precautions to avoid infection and also to ensure that they maintain a continuous supply of all their medications, including hydroxychoroquine.  

    There are, fortunately, several measures now in place to assist you with maintaining a steady supply of your medication during the covid19 outbreak.:

    1)    Lupus patients along with other vulnerable patients can secure up to three (3) months’ supply of your medications on a single visit to the pharmacy.  This applies to public patients (using Government hospitals and clinics) using the DrugServ pharmacies and also to private patients using private sector pharmacies

    a)    Private sector patients can purchase 3 months' supply drugs at reduced cost due to the following:

    i)       National Health Fund subsidy has been extended to up to 3 months:  

    (1)  lupus is covered on the individual benefits programme - systemic lupus since April 2019 and other forms of lupus including discoid lupus since February 2020 - Lupus patients should ensure they have signed up for this programme

    (2)  the subsidy available under the NHF has been extended to up three months (instead of the usual 30 days) due to the covid outbreak until July 2020

    ii)     several insurance companies have extended the allowable supply of drugs to be covered in one refill by an extra month, up to three months in the case of Sagicor and two months in the case of Medicus.

    b)    For Public Sector users (who utilise government hospitals and Clinics) utilising NHF's DrugServ Pharmacies

    i)       up to 3 month's supply of medications can now be dispensed, subject to availability, for all patients with chronic conditions, instead of the usual 30-day supply

    ii)     additional supplies have been ordered in anticipation of increase demand and supply chain disruptions

    iii)    prescriptions remain available free of cost as usual

    2)    To minimise risk of exposure while filling prescriptions, patients are being encouraged to use the drop off and pick up service offered by their pharmacy 

    a)    For Public Sector users of DrugservPharmacies convenience measures include

    i)       scheduled refill service

    ii)     priority service

    iii)    Quick Prescript app via your smart phone or kiosk

    3)    If you do not have sufficient prescription refills to tide you over, we suggest you:

    a)    Keep your scheduled doctor's appointment - once you are satisfied that proper measures are in place at your doctor's office to prevent contact spread and allow for appropriate social distancing.

    b)    Get in touch with your doctor and request prescription refill.  Be prepared to update your lab work or to go in for an appointment if you have not been seen recently and the doctor requires this.

    c)     Take along an NHF Registration Form (yellow) or Update form (blue) if you are not yet registered with the NHF or your records have not yet been updated to reflect your lupus diagnosis

    We remain in close communication with Government agents and professional bodies to see what can be done to give priority to lupus patients in securing their medications in the context of a possible shift in demand or supply.

    We are thankful for the spirit of corporation being exhibited and join you in praying for our community and other vulnerable persons, our front-line workers, leaders and the nation for God's continued protection and guidance during this challenging time.

     

     

    LUPUS FOUNDATION OF JAMAICA

    You are not alone!

     


  • 12 Mar 2020 11:23 AM | Deleted user

    COVID-19 - Update


    COVID-19 

    We acknowledge that everyone is worried about corona. What is it and what do we know about it?  Covid-19 is a newly emerged virus from the corona family that has been spreading in some parts of Asia and more recently in Europe with a few mostly imported cases being documented in cities in the USA the Caribbean (two cases confirmed in Jamaica) and has been declared a pandemic by the WHO. 

    Presentation

    It causes flu-like symptoms that in some cases (less than 5 %) have resulted in respiratory (lung) complications that in some cases have been fatal.  However, it has been noted that a greater proportion of the more severe cases have been in older persons and those with chronic conditions including diabetes, heart disease, high blood pressure or respiratory diseases

    While we do not know if any lupus patients have been affected, we know generally that persons with lupus are more vulnerable to infections due to the disease itself and well as some of the medications used to control it. 

    What should you do?

     

    a)  Avoid Infection

    Make every precaution to avoid infection:

    • Wash your hands frequently with soap and water (palm, between fingers and back of hand for at least 20 seconds, especially after going to the bathroom, before eating, and after blowing your nose, coughing or sneezing. If soap and water are not available, use an alcohol-based hand sanitizer with at least 60% alcohol. Avoid close contact with people who are sick, and stay home when you are sick.
    • Sensitise your household members and co-workers about the above as this will also help to reduce your risk of infection.
    • Travel internationally only when necessary and with proper assessment of the risk in the area and with the appropriate precautions.  Be advised by your doctor.  If booking some time forward, take out travel insurance in case you need to reschedule.

    Managing Lupus Medications during Covid-19 

    It is important to know how to manage your meds.

     

    • Do not stop your medications because you are worried about getting coronavirus.  Being on steroids and medicines known as "immunosuppressives" like azathioprine (imuran, Azoran) or mycophenylate mofetil (cellcept) can lower your body's defenses to viruses.  On the other hand having a flare of your lupus disease also lowers the defenses, with persons with lupus having the highest risk of infection and succombing to infection, during a flare.  So stopping these medicines may not help your situation.  Also you might end up needing even higher doses of medicines including steroids to get back under control.
    • On the other hand, should you develop an infection or suspected infection, some of your medications may need to be adjusted or stopped.  Your doctor will need to advise you and closely monitor your lupus in this case.
    • Take hydroxychloroquine even if you are sick.  Hydroxychloroquine is one of the medications recommended for lupus patients to help keep lupus stable (prevent flares) Hydroxychloroquine is not "immunosuppressive" ie lowering ones defenses and does not need to be stopped during an infection.  In fact it is being tried by some doctors in asia for covid cases which could potentially affect supply, so make sure you are properly stocked.

     

    Know the signs so you can recognise them in yourself or others.

    Covid-19 virus can cause mild to severe respiratory illness

    Symptoms can include

    • fever
    • cough 
    • shortness of breath

    and may occur 2-14 days after exposure (contact with the person or surface that transmitted the virus)

    Seek medical advice 

    • if you develop symptoms, and have been in close contact with a person known to have COVID-19 or 
    • if you live in or have recently been in an area with ongoing spread of COVID-19.

     

    Educate others.  Preventing spread if everyone's business:  

    Avoid spreading the virus in the same way you avoid contracting the virus

     wash your hands often with soap and water for at least 20 seconds especially after blowing your nose, coughing or sneezing; going to the bathroom and before eating or preparing food

    • avoid touching your eyes, nose and mouth with unwashed hands
    • stay home when you are sick
    • cover your cough or sneeze with a tissue, then thow the tissue in the trash

     

    References

    cdc.com

    who.int

    jis.gov.jm

    moh.gov.jm

     

    Helpful links:

     

    https://www.cdc.gov/coronavirus/2019-ncov/about/share-facts.html

    hhttps://jis.gov.jm/jamaica-and-the-coronavirus/

    https://www.who.int/news-room/q-a-detail/q-a-coronaviruses

     Manpower and Maintenance Service Limited’s Workshop - CORONAVIRUS: FACTS NOT FEAR-FIGHTING BACK


  • 10 May 2019 8:42 PM | Deleted user

    The Jamaica Gleaner, May 10, 2019Today is World Lupus Day, and everyone is called to participate in observing the day by bringing awareness to the disease. Meet Heather McKoy, a wife, mother and manager who has been living with systemic lupus erythematosus for the last 17 years.

    “It started with sharp, shooting pains in my wrists and shoulders. Then, I noticed each time I bent to pick up something, I had to take a breath before getting up as the pain was so severe,” she said. “I had just been promoted. My girls were two and six years old. I was too busy being ‘supermom’ to pay attention to a little pain,”she told The Gleaner.

    McKoy was later asked by a good friend, Carlene Gayle, to give blood as she needed to do surgery. After doing so, however, she was shocked to be summoned to the office by the nurse, who asked if she had been feeling sick lately, to which she replied, “Not really.” The nurse proceeded to inform McKoy that she needed to make an appointment with her doctor urgently and that because she was anaemic, she would not be able to donate blood.

    “Following my appointment with the doctor and a course of blood tests, I was referred to an oncologist. Some time later, I got the flu and had a fever that kept me in bed, so I went back to the doctor. She prescribed medication that made me feel better during the day, but by nightfall, the fever came back,” she explained.

    According to McKoy, one morning, after having some fruits, she started feeling nauseated and rushed to the bathroom, where she threw up everything until she saw specks of blood. She then called her husband, who rushed her to the doctor, but she fainted and only heard the name of the doctor and her location before she passed out again.

    “A battery of tests was done to determine what was happening to me, and by the second day, I felt strong enough to go the bathroom and was shocked to see a dark discolouration across my cheeks and nose – the first typical symptom of systemic lupus erythematosus,” McKoy recounted.

    EVERYTHING MAGNIFIED

    “I was blessed to be working in a place where my illness was understood, but at the same time, when I was at work, I always delivered because I could be feeling a little ill and have to ask for sick leave the next day,” she said.

    McKoy explained that with lupus, everything is magnified, so if there were a problem with her eyes, she would have to see a specialist, and things like infections or the common cold cannot be taken lightly.

    “I have lost my hair three times since having lupus. One time, I lost all the hair on my body except for my eyelashes,” she said. “The first time it happened, I bawled while the hairdresser sang to me as she cut my hair. I had to let it sink in that this was my new normal.”

    The other two times were not easy, but by this, McKoy was accustomed to her ‘normal’ changing once again. She explained that as a result, she always keeps her hair and nails looking good because she is determined not to wear her sickness.

    Lupus has caused her kidneys to deteriorate, and she has to be taking the medication that is used after an organ transplant is done. She has had to battle fibroids and skin ulcers, which are painful, and often, a minor surgery is the only way to get rid of them. Yet, when people see her and ask how she is doing, if her reply is “not well”, they say, “But you don’t look sick,” and that is because pity is not what McKoy wants.

    “My children push me to go the extra mile, and the support from my work and church community helps me. Having a husband who also understands is a plus while fighting lupus,” McKoy stated. “You also have to have a good relationship with your doctors because you may have to call or visit them at odd hours of the night. This is lupus.”

    McKoy has made many changes over the last 17 years living with lupus, all in order to see her children reach to the point of taking care of themselves. That is her dream, and to attain that, she will do anything. (Link to Full Article)

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