News

  • 28 Apr 2021 2:11 PM | Anonymous

    Scores of Jamaicans continue to suffer the debilitating effects of Lupus. The Lupus Foundation continues to support the fight against Lupus through its education programmes, advocacy and support to persons to living with the disease. 

    On May 10, LFJ will be joining in with lupus groups across the world as we observe World Lupus Day 2021 under the theme MAKE LUPUS VISIBLE.  We will be promoting awareness of lupus through the help of community and media partners and on our social media platforms, while seeking to raise funds to continue the work and support our Lupus Warriors.  

    LET US ONCE AGAIN UNITE IN THE FIGHT

    Help us MAKE LUPUS VISIBLE by participating in one our many activities across the Island leading up to and on World Lupus Day (WLD):


    1. PRINT & POSTER CAMPAIGN: Providing posters and literature for Educational displays in partnership with

      1. branches of Jamaica Library Service across the island – including Clarendon, St Elizabeth and Westmoreland Parish Libraries

      2. Lupus Treatment Centres and major Hospitals across the Island

      3. Workplaces, schools, churches, health Centres on request

      4. CALL OR EMAIL US BY APRIL 30, 2021 for materials to make your own display at work or church!


    1. RADIO AND TELEVISION INTERVIEWS AND FEATURES facilitated by our Media partners leading up to May 10

      1. TUNE IN AND INVITE A FRIEND TO LISTEN


    1. PUT ON PURPLE AND SUPPORT OUR WARRIORS:   We are encouraging all Jamaicans to wear something purple on World Lupus Day Monday May 10 in solidarity with the cause and with those affected by lupus

      1. Drop in and pick up a purple ribbons at LFJ Lupus Learning Centre, – 7 Barbados Avenue

      2. Purchase T-shirts, wrist bands or other merchandise from our office or Online Store


    1. SOCIAL MEDIA CAMPAIGN:  Leveraging social media platforms Facebook, Instagram and YouTube with messages, videos and promoting lupus awareness

      1. MAKE SURE to like, follow, subscribe (with notifications) our social media pages to receive and share our Awareness Messages, videos and images! 

      2. TAG US on pics and videos showing what you are doing to MAKE LUPUS VISIBLE in your neighbourhood or Social Media space.  #WorldLupusDay  #LupusFoundationJA


    1. FUNDRAISING DRIVE: We are on a drive to raise funds to continue ongoing and new programmes and meet increasing demand for services.  You can help!

      1. Suggest your company as a sponsor and join in as one of Our Caring Companies

      2. Make a donation of any size or encourage your family/friends

      3. Take a donation can to your work place

      4. Share our Sharable posts with links to our Donation page with family and friends

      5. Do your own Crowd-Funding campaign


    1. VIRTUAL WORLD LUPUS DAY EVENT:  Monday May 10, 2021 at 7 pm:

      1. Make Lupus Visible: Unmasking the Many Faces of Lupus

      2. Free online virtual event hosted by media practitioner Roxene Nickle of THE EDGE 105 FM

      3. Streaming live on Facebook Live and Youtube

      4. Register today at www.lupusfoundationjamaica.org



  • 25 Apr 2021 3:20 PM | Anonymous

    On May 10, 2021, LFJ will join in with lupus groups across the world as we observe World Lupus Day 2021 under the theme MAKE LUPUS VISIBLE.  We will be leveraging community and media partners, the power of social media  as well as staging of a special free online event Unmasking The Many Faces of Lupus.  

    You can help the effort by sharing your story as a person living with lupus:

    Just record a short video/videos, 30 seconds or less for each one or more of the following topics:

    • Introduce yourself, eg,  "I am -------, I am ------- years old, and I have lupus"
    • When/how were you diagnosed?
    • How are you doing now?  What is your strategy to survive or thrive with lupus?
    • How long have you been a member of the LFJ? Would you encourage other lupus warriors to join, and why?

    You can make your own recording with your camera or smartphone Send in your recording to info@lupusfoundationajamaica.org by April 30, 2021.

    Having difficulty?  We can help you!  Just visit the Lupus Foundation Learning Centre (7 Barbados Ave) on Monday April 26, 2021 or Thursday April 29 between 11:00 am and 2:00 pm and one of our volunteers can assist you with the recording.

    Disclaimer: Your video is not guaranteed to be selected for the programme due to limited time slots available. Your video might be edited to tighten your story.  By submitting your video, you have expressly given the Lupus Foundation Jamaica the permission to use your recording for current and future promotions and awareness events conducted by the Lupus Foundation Jamaica.

    TIPS FOR RECORDING AT HOME:

    If you are doing your own recording, please note the following tips for a great video:

    Instructions on recording video with a smartphone. at home without any equipment

    WATCH THIS VIDEO

    https://www.youtube.com/watch?v=Y0URmjXWmQA

    Other tips

    Other Instructions

    1. Do not do a selfie holding your camera with your hand. The footage can often be shaky and jarring to the viewer's eyes.

    2. Film in a quiet place away from loud noises like traffic, dogs barking or people shouting.

    3. Ensure your face is lit by turning on a lamp and pointing it toward your face or filming facing a window.

    4. Do not film yourself far away from the camera. You will sound better the closer you are to the video.

    5. Read the questions and familiarize yourself with your answers before recording.

    6. Ensure the video is in focus so we can see you clearly.

    7. Lastly, relax, be yourself and speak from the heart.



  • 1 Apr 2021 10:27 AM | Anonymous

     APRIL 2021 NEWSLETTER

    LFJ NEWS

    Click Here to View

  • 24 Mar 2021 8:42 PM | Anonymous

    Published:Wednesday | March 17, 2021 | 12:13 AMCecelia Campbell-Livingston/Gleaner Writer

    Dr Marsha Smalling, principal of Glenmuir High School, during the virtual launch of her book ‘Powered Up’ on Sunday, March 7.

    Nathaniel Stewart/Photographer

    Dr Marsha Smalling, principal of Glenmuir High School, during the virtual launch of her book ‘Powered Up’ on Sunday, March 7.

    Dr Marsha Smalling, principal of Glenmuir High School in Clarendon, has been fighting lupus since 2003. On Sunday, during the official launch of her book, Powered Up: Leveraging Six Pillars to Live Out Loud, she gave an insight into her life and how she embraced her autoimmune disease to live out loud.

    She shared that at one point while completing a degree, she was in hospital and talking to a professor, and instead of getting an understanding of her situation, she was reminded that she had exams in two days. Refusing to focus on being in the hospital, she took it as a challenge and did what she had to do right there.

    “I’m advocating on behalf of those who have been scoffed at; we are more than just a lupus patient. At my diagnosis in 2003, I managed to successfully complete all my degrees while working full-time jobs simultaneously,” she shared.

    Commenting on the book, Smalling said she possesses some attributes of a ‘powered’ person, and suggested practical ways in which this can be cultivated.

    IMPORTANCE OF EXECUTION

    She also had a warning for those who logged in to the virtual launch via Zoom, as well as those who were in the school’s auditorium on Sunday, that it is important to execute and not to just get motivated during the session.

    “Until you execute the ideas, you will not enjoy the real impact, and that’s the challenge we have. We come to events like these, then we leave feeling powered up. We feel like we want to conquer the world and as soon as we disconnect from this and something happen, we feel like we want to quit and we go back to the old ways of doing things,” she said.

    It is from that background the high school principal said she is offering her story, as well as her experiences in helping others to elevate.

    She had a strong message for those suffering from lupus, as she reminded them that although it might disrupt the narrative, having lupus is not a death sentence, nor does it make them lesser or hamper from living a fulfilled life.

    “I am doing this for others to strengthen their identities, be proud of who they are and live out loud. I am definitely doing this to demonstrate to future and current employers that they are capable and that we can add real value. I am here to say that if we are not given a seat at the table, we should create our own table, walk with our own chairs and stand tall and make a difference,” she urged.

    Guest speaker at the launch, Leighton McKnight, Caribbean regional advisory leader at PwC Jamaica, said his interactions with her have completely changed his life.

    After having two adopted daughters and his biological daughter being diagnosed with lupus, which he always thought to be a death sentence, he said discovering she had it and noting how she lived her life gave him hope, which he could offer his own children who looked up to him for encouragement.

    “I used her as a benchmark that this thing here can’t hold you back. The book Powered Up is for me from the heart. Faith, hope and charity, that is essentially what this book is about, and at this time in Jamaica, I don’t know who don’t need faith, hope and charity,” he shared.

    Throughout the ceremony, it was clear that Smalling had impacted not just her own relatives, but all those she came in contact with her. MC and past student of the school, Kediesha Perry, of the Jamaica Observer, shared how she encouraged her through her own challenges. Family friend Vaughn Johnson also had stories about her impact and her sibling, Phiona Lloyd Henry, who had lots to say.

    editorial@gleanerjm.com


  • 1 Mar 2021 10:22 AM | Anonymous

     MARCH 2021 NEWSLETTER

    MY LUPUS STORY
    as submitted through Tell Us Your Story

    -Georgia, 25

    It started with a cold that wouldn’t go away. Then came the swollen lymph nodes, joint pain and unbearable migraines. In September 2017 at the age of 22, after many blood tests, ultrasounds, CT Scans and a biopsy, I was diagnosed with SLE (Lupus) and you could say my life flipped entirely. Most times it feels as if your mind and body are in a constant battle with each other. You want to do a lot, and you think you can, but your body can’t handle it.

    After recovering from a bad flare at the start of the year, I decided to join the Lupus Foundation of Jamaica. I am extremely excited, thankful and grateful for their various platforms of support thus far. Although I wake up every day in pain, to know I’m not alone is the biggest comfort and the love and support I have from my family and friends always keeps me going. Also knowing that with God, prayer and faith I can do anything and get through my day. Today I am hoping my story will inspire others with the disease to share their own. Together we will fight this! Lupus doesn’t define us!

    -Georgia, 25

    COVID VACCINE F.A.Q.'s 


    Am I at higher risk of contracting Covid 19 because I have SLE?

    At this point we do not have information which indicates that Lupus patients are more likely than others to contract covid-19.

    If I contract Covid 19 am I likely to have a more severe course?

    Recently emerging data is now showing that there are some patients with Lupus who may have a more severe course, for example persons having a flare (lupus not under control), those on higher doses of steroids or specific medications that suppress the immune system’s response. This is in addition to the higher risk associated with co-morbid conditions such as obesity, diabetes and hypertension.

    Is there a specific Covid 19 vaccine that is best for persons with lupus?

    Not that we are aware.

    We do not have studies comparing the safety or efficacy of one vaccine in persons with lupus vs the other.

    Will I benefit from the vaccine?

    Due to the risk of severe Covid 19 disease in patients with Lupus, we believe any measure that can mitigate the risk of infection such as a vaccine would be beneficial.

    Are these vaccines safe?

    All vaccines have to satisfy rigorous safety requirements before dissemination. Although we have no direct studies on the vaccines in patients with SLE we still expect the benefits of vaccination in protecting against severe covid-19 would outweigh the risks of side effects which so far appear to be mild in most persons (fever, malaise, headache) and transient.

    Will my medications affect how well the vaccines work?

    The efficacy of the vaccines may be reduced in individuals on some immunosuppressive medication.

    What is the lupus foundation doing to advocate for us receiving the vaccine?

    The Lupus Foundation of Jamaica is in fact lobbying for our Lupus warriors to receive the vaccine as a matter of priority, along with other co-morbid conditions.


     

    UPCOMING EVENTS:

    April 7 (Wed) 
    Ask the Expert Live - LUPUS & BONE HEALTH with Dr Patrice Francis-Emannuel, Consultant Endocrinologist

     

    Merchandise is still Available for purchase

    Show your lupus colours and support when you wear one of our LUPUS Warrior T-Shirts.  Available with 3 sayings, visit our website to get yours, or follow the link below.

    ORDER NOW

    SUPPORT THE LUPUS FOUNDATION OF JAMAICA - many options available online follow link below.

     

    DONATE

    ASK THE EXPERT IS ON OUR YOUTUBE CHANNEL.

    CLICK HERE TO WATCH IT!

    EVENTS

    Ask The Expert Live is Back!

    Lupus and Bone Health
    with
    Consultant Endocrinologist
    Dr Patrice Francis-Emannuel

    Just text back to this number or send us an email at: info@lupusfoundationjamaica.org
    Looking forward to your feedback!

     

    Tell Us Your Story!

    We are collecting stories! LFJ is built on our members and we want to hear from you! We also want to share your stories - of challenges, resilience, overcoming, or just keeping on, as we seek to inspire and encourage other lupus warriors and supporters. What keeps you going? What part has the LFJ played in your journey and what does our LFJ community meant to you? What is your vision for the LFJ for the future?

    Share what is on your mind/heart: send us an email at info@lupusfoundationjamaica.org under the subject "My LFJ STORY" - You can also send us a text on our helpline 876-778-3892 starting with the words: MY LFJ STORY. Bear in mind your comments may be used in upcoming articles/publications. Click here for more details and tips to get started!

    7 Barbados Avenue
    Kingston 5, Jamaica, W.I.
    876-754-8458

    Helpline
    876-778-3892 (Voice/Text/Whatsapp)

    Email: info@lupusfoundationjamaica.org



     

    Learning Centre Hours
    Monday - Friday
    10am-12pm & 1pm-4pm



    FOLLOW US:

     
     

    If you support the Lupus Foundation and would like to add this to your social media pages or email signatures please feel free to copy and paste the icon to the right.

     
    I Support the Lupus Foundation of Jamaica


  • 9 Feb 2021 10:09 AM | Anonymous

    Show your Love in Purple This Valentine's week, send a Purple Love Note to a person living with lupus!  Express your wishes for a person or persons living with Lupus, or someone has supported you on your own journey.  

    Send us your message in text of 30 words or less or a video of 30 seconds or less to info@lupusfoundationjamaica.org, 8767783892 or via Facebook or Instagram messenger.

    We will be posting your messages as post it notes to our social media pages and a create video of members and followers sending their “Purple Love notes to persons  living with Lupus".  Help us celebrate and encourage our warriors and build awareness of Lupus, leveraging the sentiments of Valentine's day to deliver warmth and joy!  

    PURPLE LOVE NOTE
    FROM THE PRESIDENT:

    This February, my purple love note goes out to all the lupus warriors who continue to inspire me with their courage, determination, resilience, patience, grace, and love - that keep them fighting on and encouraging others in the battle. It has been such a privilege to fight alongside you.

    Blessings and big virtual hugs this Valentine's and always.

    Circumstances may cause us to distance but you are only a Purple Love Note away!



  • 1 Feb 2021 11:00 AM | Anonymous

    FEBRUARY 2021 NEWSLETTER

    Supporting Our Warriors!

    Supporting our warriors is what we do

    We are able to stay accessible to our lupus warriors throughout the pandemic, with over 300 direct support contacts with persons across the island providing information about lupus, help finding a treatment centre, accessing member benefits such as pharmacy discounts, counselling and connection with a support network, monthly support group meetings, and distributing care packages to our lupus warriors during the holidays.

    How can you support Lupus Warriors?

    • Show your Support by purchasing Merchandise. 

    • Donations are always needed and always appreciated.

    • Volunteer, Get Involved

    • Tell Us about your Loved Ones Lupus Journey

    PURPLE LOVE NOTE
    FROM THE PRESIDENT:

    This February, my purple love note goes out to all the lupus warriors who continue to inspire me with their courage, determination, resilience, patience, grace, and love - that keep them fighting on and encouraging others in the battle. It has been such a privilege to fight alongside you.

    Blessings and big virtual hugs this Valentine's and always.

    SEND PURPLE LOVE 

    Show your Love in Purple This Valentine's week, send a Purple Love Note to a person living with lupus!  Express your wishes for a person or persons living with Lupus, or someone has supported you on your own journey.  


    Send us your message in text of 30 words or less or a video of 30 seconds or less to info@lupusfoundationjamaica.org, 8767783892 or via Facebook or Instagram messenger.

    We will be posting your messages as post it notes to our social media pages and a create video of members and followers sending their “Purple Love notes to persons  living with Lupus".  Help us celebrate and encourage our warriors and build awareness of Lupus, leveraging the sentiments of Valentine's day to deliver warmth and joy!  

    Circumstances may cause us to distance but you are only a Purple Love Note away!


     

    UPCOMING EVENTS:

    February
    Merchandise Sale!

    February 14 (Sun) 
    Valentine's Day
    - post a Purple Love Note to a Lupus Warrior

    February 18 (Thu) Support Group Meeting (Kingston) - Zoom

    March 3 (Wed)
     Ask The Expert Live

    Mar 31 (Wed)
    Support Group Meeting – Lupus Support Group Western Ja


     

    Merchandise is always Available for purchase

    Show your lupus colours and support when you wear one of our LUPUS Warrior T-Shirts.  Available with 3 sayings, visit our website to get yours, or follow the link below.

    ORDER NOW

    SUPPORT THE LUPUS FOUNDATION OF JAMAICA - many options available online follow link below.

     

    DONATE

     

    ASK THE EXPERT

    March 3 @ 6PM

    Covid-19 Vaccine Update:  Your Questions Answered.

    ASK THE EXPERT - Every First Wednesday of the month from 6 - 6:30 pm

    Tell Us Your Story!

    We are collecting stories! LFJ is built on our members and we want to hear from you! We also want to share your stories - of challenges, resilience, overcoming, or just keeping on, as we seek to inspire and encourage other lupus warriors and supporters. What keeps you going? What part has the LFJ played in your journey and what does our LFJ community meant to you? What is your vision for the LFJ for the future?

    Share what is on your mind/heart: send us an email at info@lupusfoundationjamaica.org under the subject "My LFJ STORY" - You can also send us a text on our helpline 876-778-3892 starting with the words: MY LFJ STORY. Bear in mind your comments may be used in upcoming articles/publications. Click here for more details and tips to get started!

    7 Barbados Avenue
    Kingston 5, Jamaica, W.I.
    876-754-8458

    Helpline
    876-778-3892 (Voice/Text/Whatsapp)

    Email: info@lupusfoundationjamaica.org



     

    Learning Centre Hours
    Monday-Wednesday - Friday
    10am-12pm & 1pm-4pm



    FOLLOW US:

     
     


  • 11 Jan 2021 8:50 AM | Anonymous

    Lupus Foundation of Jamaica is built on our members and we want to hear from you! We also want to share your stories - of challenges, resilience, overcoming, or just keeping on, as we seek to inspire and encourage other lupus warriors and supporters. What keeps you going? What part has the LFJ played in your journey and what does our LFJ community meant to you? What is your vision for the LFJ for the future?

    Share what is on your mind/heart: send us an email at info@lupusfoundationjamaica.org under the subject "My LFJ STORY" - bear in mind your comments may be used in upcoming articles/publications. It can be just a sentence or up to 200 words. Feel free to include a photo or two! You can also send us a text on our helpline 8767783892 starting with the words: MY LFJ STORY

    Here are some examples of sentence starters to get you going:

    • "My name is ... and I live in ...

    • I have been living with lupus since...

    • My Journey has been....

    • I have been a part of LFJ since ....

    • Being a part of LFJ has been... (describe).

    • The LFJ community means a lot to me because ...

    • I would encourage lupus warriors to join/support the LFJ because....

    • In the future I would like to see ..... "

    Looking forward to hearing from you!

    send us an email at info@lupusfoundationjamaica.org
    under the subject "My LFJ STORY"


    Disclaimer: Your video is not guaranteed to be selected due to the limited slots available. Your video might be edited to tighten your story. By submitting your video, you have expressly given the Lupus Foundation Jamaica the permission to use your recording for current and future promotions and awareness events conducted by the Lupus Foundation Jamaica.


  • 11 Jan 2021 8:43 AM | Anonymous

    Ask The Expert Live is our monthly 30 min feature live on Facebook, where we host an Expert to answer all your questions on a specific health area.

    For our first season in 2020 we covered Diet and Lifestyle in Lupus with Dr Michelle Hamilton, Post-Symposium Review Special episode with Dr Desiree Tulloch-Reid, Dr Stacy Davis and guests, and in December Lupus and the Skin with Dr Jonathan Ho, hosted by Dr Asana Anderson.

    If you missed it, you can watch these episodes here on our Youtube page https://www.youtube.com/channel/UCa0tK05i-Y0bQqt32XlHJ8Q.

    Don't forget to Subscribe and check the "Notification Bell" so you can always be informed of new content!

    We are preparing for a New Season of Ask The Expert Live starting February 2021! What topics you would like to have covered?

    Just text back to this number or send us an email at info@lupusfoundationjamaica.org.

    Looking forward to your feedback!


  • 6 Jan 2021 9:03 AM | Anonymous


    JANUARY 2021 NEWSLETTER

    Thank You For Your Support During 2020

    This is just a note to say thank you for the support you have given to the Lupus Foundation of Jamaica during 2020. We truly appreciate your commitment, through your time and means, to improving the lives and outcomes of persons challenged by lupus in Jamaica.

    During 2020, with your help, and in spite of the challenges of Covid-19, we have be able to continue the work, including:

    • Supporting our warriors: We were able to stay accessible to our lupus warriors throughout the pandemic, with over 300 direct support contacts with persons across the island providing information about lupus, help finding a treatment centre, accessing member benefits such as pharmacy discounts, counselling and connection with a support network, monthly support group meetings, and distributing care packages to our lupus warriors during the holidays.
    • Record impact in Lupus Awareness through public education campaigns, including a record-breaking social media campaign with reach of over 25,000 through engaging messages and new programming, as well as hundreds of thousands of potential listeners/viewers through live media during our celebrity-endorsed Lupus Awareness Campaign "Knowledge About Lupus Saves Lives"
    • Providing a range of educational programmes for our health professionals, lupus patients and the public - including World Lupus Day Virtual Open House and virtual Lupus Symposium, a new monthly programme Ask the Expert Live on Facebook and You Tube, expanded educational content on our website and You tube pages
    • During 2020 we logged over 2000 volunteer hours through over 40 active volunteers, and were inspired by creativity, innovation, resilience and kindness among volunteers and members.

    In the coming year, we would like to extend our reach to increase membership across the island, establish support groups in 3 more parishes, facilitate access to special testing for lupus patients that will help save lives and address the special needs of children with lupus.

    We want to thank you again for all you have done to support the cause, as we look forward to your continued support in the Fight Against Lupus!

    You will receive a separate email soon with a summary of your donations during 2020. We invite you to visit our website or Learning Centre or contact us to become a member, donate or volunteer, update your information, or stay abreast of our News and Upcoming Events.

     

    UPCOMING EVENTS:

    Jan 27 (Wed)
    Support Group Meeting Lupus Support Group Western Ja

    February 3 (Wed) 
    New Season Launch Ask the Expert Live - Lupus and the Kidney with Dr Raquel Lowe-Jones

    February 8 - 12
    Pre-Valentine's Day Merchandise Sale!

    February 14 (Sun) 
    Valentine's Day
    - post a Purple Love Note to a Lupus Warrior

    February 18 (Thu) Support Group Meeting (Kingston) - Zoom

     

    Merchandise is still Available for purchase

    Show your lupus colours and support when you wear one of our LUPUS Warrior T-Shirts.  Available with 3 sayings, visit our website to get yours, or follow the link below.

    ORDER NOW

    SUPPORT THE LUPUS FOUNDATION OF JAMAICA - many options available online follow link below.

     

    DONATE

     

     

    NEWS

    Ask The Expert Live is Back!

    We are preparing for a New Season of Ask The Expert Live starting February 2021! What topics you would like to have covered?

    Just text back to this number or send us an email at: info@lupusfoundationjamaica.org
    Looking forward to your feedback!

     

    Tell Us Your Story!

    We are collecting stories! LFJ is built on our members and we want to hear from you! We also want to share your stories - of challenges, resilience, overcoming, or just keeping on, as we seek to inspire and encourage other lupus warriors and supporters. What keeps you going? What part has the LFJ played in your journey and what does our LFJ community meant to you? What is your vision for the LFJ for the future?

    Share what is on your mind/heart: send us an email at info@lupusfoundationjamaica.org under the subject "My LFJ STORY" - You can also send us a text on our helpline 876-778-3892 starting with the words: MY LFJ STORY. Bear in mind your comments may be used in upcoming articles/publications. Click here for more details and tips to get started!

     

    7 Barbados Avenue
    Kingston 5, Jamaica, W.I.
    876-754-8458

    Helpline
    876-778-3892 (Voice/Text/Whatsapp)

    Email: info@lupusfoundationjamaica.org

     

    Learning Centre Hours
    Monday - Friday
    10am-12pm & 1pm-4pm

     

    FOLLOW US:

     

     

    Unsubscribe


7 Barbados Avenue
Kingston 5, Jamaica, W.I.
876-754-8458

Helpline
876-778-3892 (Voice/Text/Whatsapp)

Email: info@lupusfoundationjamaica.org


Learning Centre Hours
Monday - Friday
10am-12pm & 1pm-4pm

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