News


Jamaican Lupus Warriors Celebrities, Government, Doctors and Media join up to Make Lupus Visible on World Lupus Day

Kingston, Jamaica, May 13, 2022:  On May 10, 2022, Lupus Foundation of Jamaica joined in with Lupus advocacy groups around the world in the nineteenth annual observance of World Lupus Day, in an effort to call attention to and increase support for persons with Lupus in Jamaica.

The Jamaica campaign, dubbed LUPUS LEVEL UP: Make Lupus Visible, leading up to the day consisted of a Social Media campaign, television and radio interviews featuring medical experts and Lupus survivors (termed “Lupus Warriors”), displays at clinics, schools and business places, as well as distribution of purple ribbons and merchandise, with the public being encouraged to wear purple on May 10 in solidarity with those affected.  In addition, members of the Foundation organised walks (dubbed Make Strides for Lupus) and other activities in various locations across the island with images and recordings uploaded to Social Media pages.

The key event was a free mini- Health Fair held at Emancipation Park on May 10, where State Minister in Ministry of Health & Wellness, Juliette Cuthbert Flynn, and reigning Miss Jamaica World Khalia Hall participated in the Opening Ceremony hosted by radio personality Mr Shannon-Dale Reid.  Other participants included President Elect of Medical Association of Jamaica Dr Leslie Meade and Board Members of Lupus Foundation of Jamaica.  Loiette Donegan and Audrey Malcolm, members of the Foundation living with Lupus, respectively said a prayer and shared a poem “My Lupus Strides” prepared for the occasion.  Both participated with the Minister and the Beauty Queen in a symbolic release of purple balloons.

President Dr Desiree Tulloch-Reid expressed gratitude to all those who took time to support the event and other activities. “It is heart-warming to see the outpouring of support being shown by the Government, personalities like Miss Jamaica World, the Medical Community, lupus warriors, volunteers, media and supporters by their presence with us today…It is our hope that greater understanding and continued support promoted by occasions like these will indeed save lives and improve outcomes.”

State Minister Flynn, in officially opening the event, commended the Foundation for it’s efforts. “The work of advocacy plays a vital role in ensuring that systems are in place to give support – connecting those affected with information and care to better their outcomes. I wish to commend the Lupus Foundation of Jamaica for its on-the-ground work in building a community of care for those affected by Lupus.”

Miss Jamaica World Khalia Hall spent quite some time interacting with Lupus Warriors, volunteers and Medical Professionals at the Event where she was seen graciously accommodating photo opportunities and conversations.  She commented, “I have a close family friend with an autoimmune disease and though it is not lupus, I've seen how severely it can impact someone's health and personal life. There definitely isn't enough public awareness around lupus and so I feel grateful to be able to use my platform as Miss Jamaica World to help the Lupus Foundation of Jamaica to raise awareness around this debilitating disease.” 

Attendees received free health checks including blood pressure, blood sugar and cholesterol checks, courtesy of National Health Fund with support of staff of Diabetes Association. Other Organisations participating in the Health Fair included Medical Professional associations like Jamaica Physiotherapy Association, Dermatology Association of Jamaica and Jamaica Kidney Kids who made presentations to attendees.  Mandeville Regional Pathology unit were strongly represented including their head Dr Racquel Lowe-Jones, a board member and one of the Organisers of the event.  She was accompanied by Dr Vitilius Holder of the Southern Regional Health Authority who treated attendees to an interactive Hula Hoop session that ended the day on a positive note.

For those unable to be present, a Live Broadcast by Riddim FM, hosted by Vernon Derby on his new show Spot On, kept listeners fully involved with interviews and conversations with health professionals, Lupus Warriors and volunteers. Sponsors of the event included Seaboard Jamaica, Guardian Group Foundation and National Health Fund.

END

About the Lupus Foundation of Jamaica (LFJ)

Lupus Foundation of Jamaica is a member-based, volunteer-run charitable Organisation in operation since 1984 that seeks to improve the lives and outcomes of persons affected by lupus through information, support, advocacy and research.  The Foundation is seeking support through donations and volunteers to maintain an increasing demand for support services by persons impacted by lupus.  For assistance or to learn more about what the Foundation is doing, visit www.lupusfoundationjamaica.org


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  • 10 May 2022 1:22 PM | Anonymous
    • JOIN A MAKE STRIDES FOR LUPUS EVENT NEAR YOU
      • Kingston: 10 am from Lupus Learning Centre 7 Barbados Avenue along Knutsford Boulevard to Emancipation Park
      • St Ann: 12 noon from the town clock in Ocho Rios along Main Street Turtle River Park
      • St James: 5 pm Harmony Beach Park (or attend an interactive talk at Cornwall Regional Hospital 8:30 am)
      • Don't forget to share your photos 


  • 10 May 2022 5:30 AM | Anonymous

    Khalia Hall, the reigning Miss Jamaica World, is demonstrating the philosophy of Beauty with a Purpose as she lends her time and influence to the cause of Lupus Awareness.

    Miss Jamaica World is one of several well-known personalities that have endorsed the efforts of the Foundation over the years to promote awareness about Lupus.  “I feel grateful to be able to use my platform as Miss Jamaica World to help the Lupus Foundation of Jamaica to raise awareness around this debilitating disease.” 

    On May 10, Lupus Foundation of Jamaica will be joining in with lupus groups across the world in observance of  World Lupus Day 2022 under their own theme LUPUS LEVEL UP: Make Lupus Visible.  According to Dr Desiree Tulloch-Reid, President, the campaign will have an Island wide reach through media interviews and promotions, poster displays, a social media campaign and Awareness walks dubbed “Make Strides for Lupus” across the Island and will culminate in a World Lupus Day Ceremony and mini-health fair at Emancipation Park, New Kingston, on May 10, 2022.  “We will be engaging all our members, supporters, media partners, Government, community organisations, the public at large and all our online and social media to increase awareness of lupus, specifically this year emphasising the impact of lupus on the body’s organs.”  

    Ms Hall will be supporting the LUPUS LEVEL Up campaign by a video endorsement for social media and being photographed in the purple T-shirt bearing the Campaign theme.  She will also attend the Foundation’s key event, a free mini-health fair at Emancipation Park, and take part in an official Opening Ceremony at 12:00 pm in tandem with the  Minister of State in the Ministry of Health & Wellness, Hon Juliette Cuthbert-Flynn who will declare the event open.

    Also present at the free event at Emacipation Park will be representatives of several health Professional Associations including Medical Association of Jamaica, Dermatology Association of Jamica, Pharmaceutical Society of Jamaica and Jamaica Physiotherapy Association as well as Mandeville Regional Hospital Nephrology Unit, who will interact with the public and provide health talks and demonstrations.  National Health Fund will provide free health screening in tandem with the Diabetes Association of Jamaica.  A live broadcast on Riddim FM 102 with host Vernon Derby will also feature conversations with health professionals, volunteers and persons living with Lupus, as well as reports from participants in awareness walks and other activities across the Island.

    The public is invited to wear purple on Tuesday May 10 in solidarity, to participate in local activities and make donations to the Foundation towards support services for persons with Lupus. Further information is available at the Foundation’s website www.lupusfoundationjamaica.org or by contacting 8767548458.


  • 10 May 2022 5:05 AM | Anonymous

    Survey Findings Released in Advance of World Lupus Day on May 10

    In a recent international survey, the World Lupus Federation found that 87% of the survey respondents living with lupus reported that the disease has impacted one or more major organs or organ systems. Over 6,700 people with lupus participated in the survey from over 100 countries.

    Lupus is a chronic autoimmune disease that can cause inflammation and pain in any part of the body where the immune system, which usually fights infections, attacks healthy tissue instead.

    Nearly three-quarters of respondents reported multiple organs impacted, with an average of three organs affected. Skin (60%) and bones (45%) were the most commonly reported organs affected by lupus, in addition to other top impacted organs and organ systems including kidneys (36%), GI/Digestive system (34%), eyes (31%) and central nervous system (26%).

    “Unfortunately, people living with lupus are told that they ‘don’t look sick,’ when in reality they are battling a disease that can be attacking any organ in their body and causing countless symptoms and other serious health complications,” said Stevan W. Gibson, president and CEO, Lupus Foundation of America which serves as the Secretariat of the World Lupus Federation. “The important work of the World Lupus Federation and its members helps to raise awareness of the challenges people with lupus face every day and brings attention to the need for more support across the globe, including from public and government leaders to increase funding of critical research, education and support services that help improve the quality of life for everyone affected by lupus.”

    Among the survey respondents reporting organ impact, over half (53%) were hospitalized because of organ damage caused by lupus and 42% were told by a doctor that due to lupus they have irreversible organ damage.

    The impact of lupus on the body goes beyond physical symptoms. Most respondents (89%) reported that lupus-related organ damage led to at least one significant challenge to their quality of life, such as:

    • Participation in social or recreational activities (59%)
    • Mental health problems (38%)
    • Inability to work / unemployment (33%)
    • Financial insecurity (33%)
    • Mobility or transportation challenges (33%)

    “Much of the world is unfamiliar with lupus and does not understand the pain we constantly deal with or the uncertainty of what organ or part of our body lupus will attack next,” shared Juan Carlos Cahiz, Chipiona, Spain, diagnosed with lupus in 2017. “These survey findings underscore the serious impact lupus has on our lives and why more must be done to raise awareness of this disease, and advance research and care.”

    Click here to view a topline summary and the detailed survey results, and join us on May 10 to help make lupus visible across the globe for World Lupus Day. The World Lupus Federation leads the annual observance of World Lupus Day to bring more considerable attention to the disease and its impact on millions of people worldwide.


  • 25 Apr 2022 9:02 AM | Anonymous

    Scores of Jamaicans continue to suffer the debilitating effects of Lupus. The Lupus Foundation continues to support the fight against Lupus through its education programmes, advocacy and support to persons to living with the disease. 

    On May 10, LFJ will be joining in with lupus groups across the world as we observe World Lupus Day 2022 under the theme LUPUS LEVEL UP: Make Lupus Visible.  We will be engaging all our members, supporters, media partners, community organisations, the public at large and all our online and social media increase awareness of lupus, specifically this year on the impact of lupus on the body’s organs. We are also seeking to raise funds to continue the work and support our Lupus Warriors.  

    Greater knowledge of lupus can help save lives by promoting earlier diagnosis and treatment, reducing stigma and increasing support for those affected.  Help us MAKE LUPUS VISIBLE by participating in one our many activities across the Island leading up to and on World Lupus Day (WLD):

    Ways you can participate:

    • ·       Be a spokesperson (share about your journey live in an interview or for an article)
    • ·       Record a short video to share your experience or an awareness message that we can post or share
    • ·       Write a short piece that we can publish or quote
    • ·       Create a display at your workplace or school
    • ·       Coordinate or participate in an awareness walk in your campus, church or neighbourhood
    • ·       Give a short talk or take photos at your post walk gathering
    • ·       Volunteer
    • o   Make ribbons (we'll need thousands)
    • o   Be a greeter at our WLD event
    • ·       Find us influencers or sponsors
    • ·       Support our Social Media Campaign:
    • o   Share our social media messages
    • o   Tag us on your own social media posts
    • ·       Share your skills:
    • o   photography, video recording or video editing
    • o   graphics for social media campaign
    • o   visual or performing arts
    • ·       Invite your family friends, followers, workplace or school and to wear purple on WLD and participate in a local event
    • ·       Have other ideas?  Let us know! 

    REGISTER HERE to participate in our WLD Events!

    WorldLupusDay2022_Shedule.pdf

    CONTACT US

    Lupus Foundation of Jamaica

    7 Barbados Avenue, Kingston 5

    Phone:876-754-8458, Helpline: 876-778-3892

    email:  info@lupusfoundationjamaica.org 

    website: www.lupusfoundationofjamaica.org

    Please like, follow and subscribe to our social media pages:

    Facebook | YouTube | Instagram | LinkedIn

  • 14 Feb 2022 9:49 AM | Anonymous

    ANNUAL GENERAL MEETING MARCH 30, 2022 - GET READY TO PARTICIPATE!


    LFJ is a volunteer-run organisation led by an Executive Board elected by members. 


    The Annual General Meeting (AGM) is open to all members, where members can review the progress of the Organisation towards its mission including evaluation of programmes and financial reports, and elect their Board of Directors for the coming year.  Members in good standing will be eligible to participate, including to nominate, be nominated and to elect or be elected to serve on the Executive Board.


    To make sure you have the opportunity to participate, become a member or renew your membership today!  Have you signed up for membership in the past but not sure of your status? Check your Membership Status and update your contact and other informationby visiting our website– Give us a call if you need help. Once your membership is active you can log in with your email address to view your profile, download your membership card and access member only contentincluding nomination forms and instructions as well as Voting Instructions, Financial Reports and Resolutions as they are posted.  Learn more about other Member Benefits here.


    Note that the AGM will be conducted online via Zoom link, with limited capacity for in-person participationby pre-arrangement only on a first-come, first-serve basis. Make sure to get in touch with us by Wednesday March 16, 2022 if you wish to participate in person or by proxy.


    NOMINATIONS ARE OPEN!

    As an active member you can nominate persons to serve on the Executive Board of the Lupus Foundation of Jamaica and also be nominated yourself.  Nominations should be be submitted by Wednesday March 16, 2022 to be vetted and submitted for the upcoming Annual General Meeting (AGM) on Wednesday March 30, 2022.  


    Members can access more information including nomination instructionsand formson our website.  (To view and access member-only contentYou will first need to log inby clicking the blue LOG IN button at the bottom left of the main page - or top right from your cell phone.)


    If you are interested in serving yourself, and would be open to being nominated, please reach out and let us know, at info@lupusfoundationjamaica.org, so we can follow up further with you.



    VOLUNTEERS NEEDED!

    Besides being elected to the Board there are several Committees you can serve on and many other ways to Volunteer or give of your time and resources to support our Warriors. 


    Help and skills are currently needed in the following areas:


    • Writing and/or Communications

    • Accounting

    • Legal

    • Administration/Records Management

    • Health care

    • Social work

    • Counselling

    • Marketing

    • Graphic Design

    • Human Resources

    • Grant writing

    • Audio-visual tech skills

    • Photography, Video recording/editing

    • Event planning

    Are you a people person who can make persons feel welcome and stay connected?

    Are you good at coordinating and organising people?

    Do you have time or tools to run errands or make deliveries?

    Do you have creative skills in music or the Arts you would like to share?

    Do you have contacts that could provide access to funds or other resources?


    Reach out to us for more information about how you can get involved!


    As the saying goes, “We are stronger together” – Join the fight today!


  • 13 Feb 2022 10:29 AM | Anonymous

    As the Covid-19 pandemic continues and following the recent surge of cases in January, our Medical practitioners are continuing to get many questions from lupus warriors about vaccination for COVID-19. Here is the bottom line:

    The recommendation from our Medical Team at LFJ is for all lupus patients is to be vaccinated. Here are some of the reasons:

    COVID-19 Vaccines Are Safe And Effective

    COVID-19 vaccines can keep you from getting and spreading the virus that causes COVID-19. COVID-19 vaccines have been rigorously tested and approved by local and international regulatory bodies and are critical to reducing illness, hospitalization and death associated with COVID-19.

    Evidence is showing that risk of complications from COVID-19 infection may be higher in some lupus patients who are on higher doses of prednisone or take certain immunomodulatory drugs to control their disease. Many lupus patients also have co-morbid conditions such as hypertension, diabetes, or heart, lung, or kidney disease which also place them at high risk for complications of COVID-19 infection. From this standpoint, the benefit greatly outweighs the small risk of post-vaccination symptoms or minor flares which are generally short-lived.

    COVID-19 Vaccination Is A Safer Way To Help Build Protection

    Get vaccinated regardless of whether you already had COVID-19. Evidence is emerging that people get better protection by being fully vaccinated compared with having had COVID-19.

    Vaccines are effective in patients with lupus, although many persons with lupus may have a weaker response to the vaccine due to impaired immune response. As of November 2021, persons who take immunosuppressive medication to control their lupus or who are on dialysis are approved for an additional dose as part of their Primary series to ensure more complete protection. You would need to provide a letter from your practitioner to access this additional dose. You can download a copy to take to your doctor and take it with you to your nearest vaccination centre. You do not need a letter to get a booster dose (6 months or more after your last dose).

    None Of The COVID-19 Vaccines Can Make You Sick With COVID-19

    None of the COVID-19 vaccines contain the live virus that causes COVID-19 so a COVID-19 vaccine cannot make you sick with COVID-19.

    As the immune system is stimulated to mount a protective response against COVID-19, post-vaccination symptoms such as malaise or joint pains may occur in some persons. These usually go away on their own without treatment and can be managed with rest and paracetamol. Reports of unusual clots associated with some vaccines in Europe and North American studies are very rare (4 per million persons); on the other hand, COVID-19 infection itself carries a significant risk of clotting, which can affect critical organs such as lungs, heart, kidneys, and brain, contributing to death during COVID-19 or longer-term disability following recovery. This is the reason all persons hospitalised with COVID-19 are immediately treated with blood thinners.

    Once You Are Fully Vaccinated, You Can Start Doing More

    After you are fully vaccinated for COVID-19, you can resume many activities that you did before the pandemic.

    Staying in all the time for many persons can itself have negative health effects if this results in reduced exercise or physical activity or contributes to social isolation. In addition, even if you stay home, family members who go out to work or school can still unknowingly transmit the virus to you.

    If you still have questions, we encourage you to check out our previous articles such as Covid19 FAQ and our March and September episodes of Ask The Expert Live on our YouTube Page, or make contact with your doctor about your specific concerns. Just bear in mind that if you remain unvaccinated while waiting for your appointment you remain at risk of contracting – and possibly experiencing complications of - COVID-19.


    References:

    Jamaica Information Service https://jis.gov.jm/COVID-19-vaccination-jamaica/

    American College of Rheumatology COVID-19 Vaccine Clinical Guidance Summary for Patients with Rheumatic and Musculoskeletal Diseases https://www.rheumatology.org/Portals/0/Files/COVID-19-Vaccine-Clinical-Guidance-Rheumatic-Diseases-Summary.pdf


  • 8 Dec 2021 9:35 AM | Anonymous

    Lupus patients were included among a special group of persons approved for additional vaccine against Covid-19.   The move is to ensure optimal protection for persons whose condition or medications may impair their antibody response to the regular vaccine schedule.  See the announcement on JIS website: https://jis.gov.jm/immunocompromised-jamaicans-to-get-additional-dose-of-covid-19-vaccines/ To access the additional dose just bring a letter from your doctor to the vaccination centre near you.  To make it easy, we posted a template for the doctor's letter to our website - just print and provide your date of birth have your doctor fill it out. To make an appointment visit https://jis.gov.jm/covid-19-vaccination-jamaica/ or call 888-ONE-LOVE (663-5683).


  • 28 Nov 2021 3:25 PM | Anonymous


    For 2021 Lupus Foundation of Jamaica (LFJ)’s month-long annual campaign placed a spotlight on Children and Youth with Lupus.  With the average age of onset for lupus of 22 years and up to 20% of persons being diagnosed as children, the LFJ sought to highlight and raise awareness of this special group among the general public and youth in particular.


    Annual Print and Poster Campaign:

    Once again, arresting images and messaging on Posters and other print items served to educate and promote awareness at Hospitals, Clinics, Doctors’ Offices, Campuses, Libraries and other high traffic locations and included educational posters about lupus, hightlighting activities of the month and how persons could "get involved", as well as educational brochures for distribution.


    Social Media Campaign:  In keeping with the Youth focus, the LFJ enjoyed continued growth in Social Media presence on You Tube, Social Media platforms Facebook, Instagram, Youtube, Twitter, LinkedInand even Tik Tok, with a reach of over 30,000 and a growing number of followers.  Thanks to those who liked, shared and followed to help get the word out about lupus and LFJ.


    Media Campaign: Thannks to a range of Media Partners, LFJ Youth spokespersons such as young poet and musical artiste Kianna Jackson, youth board member Umeko Chin and Communications Team member Georgia Johnson, supported by LFJ health professionals were able to share information, Personal stories and even artistic features such as poems and videos to engage all ages through electronic media of radio, television and online platforms. These included several programmes specially targeted for Youth such as Talk Up Yout', Campus Connection and UWI campus radio station Newstalk93FM,. These combined with 11writtend pieces published in print and online, highlighting information about lupus, personal stories and activities of the month, to reach an estimated audience of 700,000 to raise lupus awareness.


    Ask The Expert Live: The LFJ's popular online Q & A programme marked it's 1 year anniversary with the first Ask The Expert Live - Youth Edition sponsored by Barita Investments Ltd, that featured special guest Paediatric Nephrologist Dr Rebecca Thomas-Chen hosted by LFJ Rheumatologist Dr Taneisha McGhie-Phillips, answering questions from youth, parents and others with over 100 persons joining in live steam on Facebook and You Tube


    Community Engagement :  


    In spite of the Covid-19 pandemic and necessary curfews and lockdowns during October, Community participationwas strong as LFJ members and representatives were hosted by community partners such as Church of St Margaret's Liguanea, Bush Park SDA Church Adventist Youth Society and subsequently employees of eGov Jamaica and JN group via in-person and virtual engagements.  


    Laps for Lupus Awareness:  In our second Laps Your Way virtual lapathon, members and supporters used sharable graphics to raise funds and promote awareness while posting their "laps" activity online, culminating in our 4th (and second Virtual) Staging of Laps for Lupus Awareness Virtual Event sponsored by Title Sponsor JN Group.  Attendees enjoyed a fun, interactive event hosted by MC Sakina Deer featuring workout with Mr Jamaica Kurt Dunn, Comedy Gamesman Dalton Spence, musical performances by Remarkable Arts Company, while Prizes and Give-Aways added to fun and fellowship.  


    Put on Purple Fridayscontinued to grow in popularity with members and the public being encouraged to wear something purple each Friday in October, to promote awareness and support for Lupus Warriors, triggering a spike in LFJ merchandise sales.   



    Virtual Lupus Symposium: The Month's activities culminated in the Foundation's Flag ship event, held once again in the virtual space, under the theme Children & Youth with Lupus - Improving Outcomes through Knowledge and Support.  Supported by title Sponsor National Health Fund and others the event was opened by representatives of the Ministry of Health and Wellness who commended the Foundation on its continued contribution to lupus education and care.  International and local experts including Key note presenter Prof Earl Silverman of University of Toronto, shared insights on Outcomes in Paediatric Lupus, as well as addressing areas of Kidney, Skin, Treatment adherence and Adolescent with lupus, while a multidisciplinary panel tackled practical ways to support children and youth with lupus in home, school and health care  and community settings.  Patient perspective was strongly represented with a short film Voices of Young Warriors while attendees were treated between sessions to musical pieces by students of Music House in support of Lupus awareness.  Even on the first day off lock down, over 500 persons joined in the interactive Zoom conference or viewed the livestream on YouTubeand Facebook, including over 100 registered medical professionals who were issued continuing medical education credits. Excellent reviews were received on post-event surveys.


    View the Voices of Young WarriorsVideo on our You Tube page! Don’t forget to like, follow and subscribe!


    The LFJ extends a big thank you to all our volunteers, sponsors, donors, members, supporters and partners who rallied to ensure a successful month, promoting greater awareness about lupus, encouraging, educating, and rallying others to the cause. We believe that lives will be saved and outcomes changed through your effort and support for this annual initiative as we continue the Fight Against Lupus.



  • 22 Oct 2021 10:12 AM | Anonymous

    For our Symposium this year we are focusing on Children and Youth with Lupus and by extension their families. 

    If you are a youth with lupus, experienced lupus as a youth, or are a parent or caregiver, we invite you to submit a short video recording just sharing your experience or perspective.  This will help inform medical persons and others in attendance who are interested in helping young persons with lupus do better.

    Please send submissions by Wed Oct 27 if possible, using wetransfer.com to info@lupusfoundationjamaica.org

    Here are some tips you can use for a great video:

    • For best results mount the camera/device so it is stationary or have another person film you. 
    • If a phone is used, it should be held horizontally for a landscape view. 
    • Make sure your light source (eg a bright window) is in front of and not behind you.  

    Here are some starter questions that might help guide you (suggestions only):  

    YOUTH

    • Introduce yourself
    • How old are you now?
    • How old were you when you were diagnosed with lupus?
    • Do you recall what led to you being diagnosed with lupus?
    • Describe what that experience was like.
    • Had you ever heard of lupus before?
    • How are you doing now?
    • What has it been like for you living with lupus?
    • What are the things that have been difficult for you?
    • Do you get overwhelmed?
    • What has been helpful for you?
    • What else would be helpful for you, at home, at school or otherwise, in dealing with lupus?
    • Do you know anyone else with lupus?

    PARENT/CAREGIVER

    • Introduce yourself
    • What is your connection to a child/ youth with lupus?  
    • When was he/she diagnosed and at what age ?
    • What led to the diagnosis?
    • What was it like hearing that news?
    • Had you ever heard of lupus before?
    • How is he/she doing now?
    • What has the journey been like?
    • what has been difficult for him/her, or for the family?
    • What has been helpful?
    • What else do you think would be helpful for your child, or for you as a family
    • Do you know any other families coping with lupus?
    • What kind of support would you want to see for children/parents/caregivers impacted by lupus?

    Note that not all submissions may be used for the Symposium, also that your submission may be edited and may be used for other projects to promote lupus awareness.

    Thanks for your help in the fight against lupus!


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Kingston 5, Jamaica, W.I.
876-754-8458

Helpline
876-778-3892 (Voice/Text/Whatsapp)

Email: info@lupusfoundationjamaica.org


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