January 2021 Newsletter

6 Jan 2021 9:03 AM | Anonymous


JANUARY 2021 NEWSLETTER

Thank You For Your Support During 2020

This is just a note to say thank you for the support you have given to the Lupus Foundation of Jamaica during 2020. We truly appreciate your commitment, through your time and means, to improving the lives and outcomes of persons challenged by lupus in Jamaica.

During 2020, with your help, and in spite of the challenges of Covid-19, we have be able to continue the work, including:

  • Supporting our warriors: We were able to stay accessible to our lupus warriors throughout the pandemic, with over 300 direct support contacts with persons across the island providing information about lupus, help finding a treatment centre, accessing member benefits such as pharmacy discounts, counselling and connection with a support network, monthly support group meetings, and distributing care packages to our lupus warriors during the holidays.
  • Record impact in Lupus Awareness through public education campaigns, including a record-breaking social media campaign with reach of over 25,000 through engaging messages and new programming, as well as hundreds of thousands of potential listeners/viewers through live media during our celebrity-endorsed Lupus Awareness Campaign "Knowledge About Lupus Saves Lives"
  • Providing a range of educational programmes for our health professionals, lupus patients and the public - including World Lupus Day Virtual Open House and virtual Lupus Symposium, a new monthly programme Ask the Expert Live on Facebook and You Tube, expanded educational content on our website and You tube pages
  • During 2020 we logged over 2000 volunteer hours through over 40 active volunteers, and were inspired by creativity, innovation, resilience and kindness among volunteers and members.

In the coming year, we would like to extend our reach to increase membership across the island, establish support groups in 3 more parishes, facilitate access to special testing for lupus patients that will help save lives and address the special needs of children with lupus.

We want to thank you again for all you have done to support the cause, as we look forward to your continued support in the Fight Against Lupus!

You will receive a separate email soon with a summary of your donations during 2020. We invite you to visit our website or Learning Centre or contact us to become a member, donate or volunteer, update your information, or stay abreast of our News and Upcoming Events.

 

UPCOMING EVENTS:

Jan 27 (Wed)
Support Group Meeting Lupus Support Group Western Ja

February 3 (Wed) 
New Season Launch Ask the Expert Live - Lupus and the Kidney with Dr Raquel Lowe-Jones

February 8 - 12
Pre-Valentine's Day Merchandise Sale!

February 14 (Sun) 
Valentine's Day
- post a Purple Love Note to a Lupus Warrior

February 18 (Thu) Support Group Meeting (Kingston) - Zoom

 

Merchandise is still Available for purchase

Show your lupus colours and support when you wear one of our LUPUS Warrior T-Shirts.  Available with 3 sayings, visit our website to get yours, or follow the link below.

ORDER NOW

SUPPORT THE LUPUS FOUNDATION OF JAMAICA - many options available online follow link below.

 

DONATE

 

 

NEWS

Ask The Expert Live is Back!

We are preparing for a New Season of Ask The Expert Live starting February 2021! What topics you would like to have covered?

Just text back to this number or send us an email at: info@lupusfoundationjamaica.org
Looking forward to your feedback!

 

Tell Us Your Story!

We are collecting stories! LFJ is built on our members and we want to hear from you! We also want to share your stories - of challenges, resilience, overcoming, or just keeping on, as we seek to inspire and encourage other lupus warriors and supporters. What keeps you going? What part has the LFJ played in your journey and what does our LFJ community meant to you? What is your vision for the LFJ for the future?

Share what is on your mind/heart: send us an email at info@lupusfoundationjamaica.org under the subject "My LFJ STORY" - You can also send us a text on our helpline 876-778-3892 starting with the words: MY LFJ STORY. Bear in mind your comments may be used in upcoming articles/publications. Click here for more details and tips to get started!

 

7 Barbados Avenue
Kingston 5, Jamaica, W.I.
876-754-8458

Helpline
876-778-3892 (Voice/Text/Whatsapp)

Email: info@lupusfoundationjamaica.org

 

Learning Centre Hours
Monday - Friday
10am-12pm & 1pm-4pm

 

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Miss Jamaica World Khalia Hall to join with Government and Medical Societies to support World Lupus Day Observance


Khalia Hall, the reigning Miss Jamaica World, is demonstrating the philosophy of Beauty with a Purpose as she lends her time and influence to the cause of Lupus Awareness.

Miss Jamaica World is one of several well-known personalities that have endorsed the efforts of the Foundation over the years to promote awareness about Lupus.  “I feel grateful to be able to use my platform as Miss Jamaica World to help the Lupus Foundation of Jamaica to raise awareness around this debilitating disease.” 

On May 10, Lupus Foundation of Jamaica will be joining in with lupus groups across the world in observance of  World Lupus Day 2022 under their own theme LUPUS LEVEL UP: Make Lupus Visible.  According to Dr Desiree Tulloch-Reid, President, the campaign will have an Island wide reach through media interviews and promotions, poster displays, a social media campaign and Awareness walks dubbed “Make Strides for Lupus” across the Island and will culminate in a World Lupus Day Ceremony and mini-health fair at Emancipation Park, New Kingston, on May 10, 2022.  “We will be engaging all our members, supporters, media partners, Government, community organisations, the public at large and all our online and social media to increase awareness of lupus, specifically this year emphasising the impact of lupus on the body’s organs.”  

Ms Hall will be supporting the LUPUS LEVEL Up campaign by a video endorsement for social media and being photographed in the purple T-shirt bearing the Campaign theme.  She will also attend the Foundation’s key event, a free mini-health fair at Emancipation Park, and take part in an official Opening Ceremony at 12:00 pm in tandem with the  Minister of State in the Ministry of Health & Wellness, Hon Juliette Cuthbert-Flynn who will declare the event open.

Also present at the free event at Emacipation Park will be representatives of several health Professional Associations including Medical Association of Jamaica, Dermatology Association of Jamica, Pharmaceutical Society of Jamaica and Jamaica Physiotherapy Association as well as Mandeville Regional Hospital Nephrology Unit, who will interact with the public and provide health talks and demonstrations.  National Health Fund will provide free health screening in tandem with the Diabetes Association of Jamaica.  A live broadcast on Riddim FM 102 with host Vernon Derby will also feature conversations with health professionals, volunteers and persons living with Lupus, as well as reports from participants in awareness walks and other activities across the Island.

The public is invited to wear purple on Tuesday May 10 in solidarity, to participate in local activities and make donations to the Foundation towards support services for persons with Lupus. Further information is available at the Foundation’s website www.lupusfoundationjamaica.org or by contacting 8767548458.


7 Barbados Avenue
Kingston 5, Jamaica, W.I.
876-754-8458

Helpline
876-778-3892 (Voice/Text/Whatsapp)

Email: info@lupusfoundationjamaica.org


Learning Centre Hours
Monday - Friday
10am-12pm & 1pm-4pm

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