March 2021 Newsletter

1 Mar 2021 10:22 AM | Anonymous

 MARCH 2021 NEWSLETTER

MY LUPUS STORY
as submitted through Tell Us Your Story

-Georgia, 25

It started with a cold that wouldn’t go away. Then came the swollen lymph nodes, joint pain and unbearable migraines. In September 2017 at the age of 22, after many blood tests, ultrasounds, CT Scans and a biopsy, I was diagnosed with SLE (Lupus) and you could say my life flipped entirely. Most times it feels as if your mind and body are in a constant battle with each other. You want to do a lot, and you think you can, but your body can’t handle it.

After recovering from a bad flare at the start of the year, I decided to join the Lupus Foundation of Jamaica. I am extremely excited, thankful and grateful for their various platforms of support thus far. Although I wake up every day in pain, to know I’m not alone is the biggest comfort and the love and support I have from my family and friends always keeps me going. Also knowing that with God, prayer and faith I can do anything and get through my day. Today I am hoping my story will inspire others with the disease to share their own. Together we will fight this! Lupus doesn’t define us!

-Georgia, 25

COVID VACCINE F.A.Q.'s 


Am I at higher risk of contracting Covid 19 because I have SLE?

At this point we do not have information which indicates that Lupus patients are more likely than others to contract covid-19.

If I contract Covid 19 am I likely to have a more severe course?

Recently emerging data is now showing that there are some patients with Lupus who may have a more severe course, for example persons having a flare (lupus not under control), those on higher doses of steroids or specific medications that suppress the immune system’s response. This is in addition to the higher risk associated with co-morbid conditions such as obesity, diabetes and hypertension.

Is there a specific Covid 19 vaccine that is best for persons with lupus?

Not that we are aware.

We do not have studies comparing the safety or efficacy of one vaccine in persons with lupus vs the other.

Will I benefit from the vaccine?

Due to the risk of severe Covid 19 disease in patients with Lupus, we believe any measure that can mitigate the risk of infection such as a vaccine would be beneficial.

Are these vaccines safe?

All vaccines have to satisfy rigorous safety requirements before dissemination. Although we have no direct studies on the vaccines in patients with SLE we still expect the benefits of vaccination in protecting against severe covid-19 would outweigh the risks of side effects which so far appear to be mild in most persons (fever, malaise, headache) and transient.

Will my medications affect how well the vaccines work?

The efficacy of the vaccines may be reduced in individuals on some immunosuppressive medication.

What is the lupus foundation doing to advocate for us receiving the vaccine?

The Lupus Foundation of Jamaica is in fact lobbying for our Lupus warriors to receive the vaccine as a matter of priority, along with other co-morbid conditions.


 

UPCOMING EVENTS:

April 7 (Wed) 
Ask the Expert Live - LUPUS & BONE HEALTH with Dr Patrice Francis-Emannuel, Consultant Endocrinologist

 

Merchandise is still Available for purchase

Show your lupus colours and support when you wear one of our LUPUS Warrior T-Shirts.  Available with 3 sayings, visit our website to get yours, or follow the link below.

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EVENTS

Ask The Expert Live is Back!

Lupus and Bone Health
with
Consultant Endocrinologist
Dr Patrice Francis-Emannuel

Just text back to this number or send us an email at: info@lupusfoundationjamaica.org
Looking forward to your feedback!

 

Tell Us Your Story!

We are collecting stories! LFJ is built on our members and we want to hear from you! We also want to share your stories - of challenges, resilience, overcoming, or just keeping on, as we seek to inspire and encourage other lupus warriors and supporters. What keeps you going? What part has the LFJ played in your journey and what does our LFJ community meant to you? What is your vision for the LFJ for the future?

Share what is on your mind/heart: send us an email at info@lupusfoundationjamaica.org under the subject "My LFJ STORY" - You can also send us a text on our helpline 876-778-3892 starting with the words: MY LFJ STORY. Bear in mind your comments may be used in upcoming articles/publications. Click here for more details and tips to get started!

7 Barbados Avenue
Kingston 5, Jamaica, W.I.
876-754-8458

Helpline
876-778-3892 (Voice/Text/Whatsapp)

Email: info@lupusfoundationjamaica.org



 

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Miss Jamaica World Khalia Hall to join with Government and Medical Societies to support World Lupus Day Observance


Khalia Hall, the reigning Miss Jamaica World, is demonstrating the philosophy of Beauty with a Purpose as she lends her time and influence to the cause of Lupus Awareness.

Miss Jamaica World is one of several well-known personalities that have endorsed the efforts of the Foundation over the years to promote awareness about Lupus.  “I feel grateful to be able to use my platform as Miss Jamaica World to help the Lupus Foundation of Jamaica to raise awareness around this debilitating disease.” 

On May 10, Lupus Foundation of Jamaica will be joining in with lupus groups across the world in observance of  World Lupus Day 2022 under their own theme LUPUS LEVEL UP: Make Lupus Visible.  According to Dr Desiree Tulloch-Reid, President, the campaign will have an Island wide reach through media interviews and promotions, poster displays, a social media campaign and Awareness walks dubbed “Make Strides for Lupus” across the Island and will culminate in a World Lupus Day Ceremony and mini-health fair at Emancipation Park, New Kingston, on May 10, 2022.  “We will be engaging all our members, supporters, media partners, Government, community organisations, the public at large and all our online and social media to increase awareness of lupus, specifically this year emphasising the impact of lupus on the body’s organs.”  

Ms Hall will be supporting the LUPUS LEVEL Up campaign by a video endorsement for social media and being photographed in the purple T-shirt bearing the Campaign theme.  She will also attend the Foundation’s key event, a free mini-health fair at Emancipation Park, and take part in an official Opening Ceremony at 12:00 pm in tandem with the  Minister of State in the Ministry of Health & Wellness, Hon Juliette Cuthbert-Flynn who will declare the event open.

Also present at the free event at Emacipation Park will be representatives of several health Professional Associations including Medical Association of Jamaica, Dermatology Association of Jamica, Pharmaceutical Society of Jamaica and Jamaica Physiotherapy Association as well as Mandeville Regional Hospital Nephrology Unit, who will interact with the public and provide health talks and demonstrations.  National Health Fund will provide free health screening in tandem with the Diabetes Association of Jamaica.  A live broadcast on Riddim FM 102 with host Vernon Derby will also feature conversations with health professionals, volunteers and persons living with Lupus, as well as reports from participants in awareness walks and other activities across the Island.

The public is invited to wear purple on Tuesday May 10 in solidarity, to participate in local activities and make donations to the Foundation towards support services for persons with Lupus. Further information is available at the Foundation’s website www.lupusfoundationjamaica.org or by contacting 8767548458.


7 Barbados Avenue
Kingston 5, Jamaica, W.I.
876-754-8458

Helpline
876-778-3892 (Voice/Text/Whatsapp)

Email: info@lupusfoundationjamaica.org


Learning Centre Hours
Monday - Friday
10am-12pm & 1pm-4pm

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