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March 2021 Newsletter

1 Mar 2021 10:22 AM | Anonymous

 MARCH 2021 NEWSLETTER

MY LUPUS STORY
as submitted through Tell Us Your Story

-Georgia, 25

It started with a cold that wouldn’t go away. Then came the swollen lymph nodes, joint pain and unbearable migraines. In September 2017 at the age of 22, after many blood tests, ultrasounds, CT Scans and a biopsy, I was diagnosed with SLE (Lupus) and you could say my life flipped entirely. Most times it feels as if your mind and body are in a constant battle with each other. You want to do a lot, and you think you can, but your body can’t handle it.

After recovering from a bad flare at the start of the year, I decided to join the Lupus Foundation of Jamaica. I am extremely excited, thankful and grateful for their various platforms of support thus far. Although I wake up every day in pain, to know I’m not alone is the biggest comfort and the love and support I have from my family and friends always keeps me going. Also knowing that with God, prayer and faith I can do anything and get through my day. Today I am hoping my story will inspire others with the disease to share their own. Together we will fight this! Lupus doesn’t define us!

-Georgia, 25

COVID VACCINE F.A.Q.'s 


Am I at higher risk of contracting Covid 19 because I have SLE?

At this point we do not have information which indicates that Lupus patients are more likely than others to contract covid-19.

If I contract Covid 19 am I likely to have a more severe course?

Recently emerging data is now showing that there are some patients with Lupus who may have a more severe course, for example persons having a flare (lupus not under control), those on higher doses of steroids or specific medications that suppress the immune system’s response. This is in addition to the higher risk associated with co-morbid conditions such as obesity, diabetes and hypertension.

Is there a specific Covid 19 vaccine that is best for persons with lupus?

Not that we are aware.

We do not have studies comparing the safety or efficacy of one vaccine in persons with lupus vs the other.

Will I benefit from the vaccine?

Due to the risk of severe Covid 19 disease in patients with Lupus, we believe any measure that can mitigate the risk of infection such as a vaccine would be beneficial.

Are these vaccines safe?

All vaccines have to satisfy rigorous safety requirements before dissemination. Although we have no direct studies on the vaccines in patients with SLE we still expect the benefits of vaccination in protecting against severe covid-19 would outweigh the risks of side effects which so far appear to be mild in most persons (fever, malaise, headache) and transient.

Will my medications affect how well the vaccines work?

The efficacy of the vaccines may be reduced in individuals on some immunosuppressive medication.

What is the lupus foundation doing to advocate for us receiving the vaccine?

The Lupus Foundation of Jamaica is in fact lobbying for our Lupus warriors to receive the vaccine as a matter of priority, along with other co-morbid conditions.


 

UPCOMING EVENTS:

April 7 (Wed) 
Ask the Expert Live - LUPUS & BONE HEALTH with Dr Patrice Francis-Emannuel, Consultant Endocrinologist

 

Merchandise is still Available for purchase

Show your lupus colours and support when you wear one of our LUPUS Warrior T-Shirts.  Available with 3 sayings, visit our website to get yours, or follow the link below.

ORDER NOW

SUPPORT THE LUPUS FOUNDATION OF JAMAICA - many options available online follow link below.

 

DONATE

ASK THE EXPERT IS ON OUR YOUTUBE CHANNEL.

CLICK HERE TO WATCH IT!

EVENTS

Ask The Expert Live is Back!

Lupus and Bone Health
with
Consultant Endocrinologist
Dr Patrice Francis-Emannuel

Just text back to this number or send us an email at: info@lupusfoundationjamaica.org
Looking forward to your feedback!

 

Tell Us Your Story!

We are collecting stories! LFJ is built on our members and we want to hear from you! We also want to share your stories - of challenges, resilience, overcoming, or just keeping on, as we seek to inspire and encourage other lupus warriors and supporters. What keeps you going? What part has the LFJ played in your journey and what does our LFJ community meant to you? What is your vision for the LFJ for the future?

Share what is on your mind/heart: send us an email at info@lupusfoundationjamaica.org under the subject "My LFJ STORY" - You can also send us a text on our helpline 876-778-3892 starting with the words: MY LFJ STORY. Bear in mind your comments may be used in upcoming articles/publications. Click here for more details and tips to get started!

7 Barbados Avenue
Kingston 5, Jamaica, W.I.
876-754-8458

Helpline
876-778-3892 (Voice/Text/Whatsapp)

Email: info@lupusfoundationjamaica.org



 

Learning Centre Hours
Monday - Friday
10am-12pm & 1pm-4pm



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7 Barbados Avenue
Kingston 5, Jamaica, W.I.
876-754-8458

Helpline
876-778-3892 (Voice/Text/Whatsapp)

Email: info@lupusfoundationjamaica.org


Learning Centre Hours
Monday - Friday
9:00am-4:00pm 

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