Foundation Launches Campaign for Children & Youth With Lupus

1 Oct 2021 10:00 AM | Anonymous

Kingston, Jamaica, September 30, 2021: Unlike most chronic (or life-long) conditions, lupus is considered a disease of the young, with an average age of onset of 22 years and up to 20% of persons being diagnosed as children. With this in mind, the Lupus Foundation of Jamaica (“LFJ” or “the Foundation”) has chosen the theme “Children and Youth With Lupus: Saving Lives Through Knowledge and Support” to anchor its observance of Lupus Awareness Month this October. The observance of October as focal point for Lupus is a seminal event each year in Jamaica and the wider Commonwealth territories.

Dr. Desiree Tulloch-Reid, Consultant Rheumatologist and President of LFJ points out that “Lupus in children and youth generally manifests more severely with more frequent involvement of critical organ systems such as kidney, nervous system and blood, causing lupus to be, unfortunately, one of the significant medical causes of death among youth in Jamaica.” Dr. Tulloch-Reid further adds that the disease can also have a far-reaching impact on a child’s physical, academic and social development.

On the other hand, greater awareness in the wider society can promote earlier detection and access to effective treatment, reduce stigma and encourage greater support for those living with lupus and their families.

Lupus is a serious lifelong autoimmune condition that occurs in high rates in Jamaica and Afro-Caribbean populations, with an estimated six thousand Jamaicans living with the sometimes life-threatening disorder.

Lupus Foundation of Jamaica is inviting corporate Jamaica and the Public at large to join in supporting a campaign aimed at increasing awareness and improving outcomes of Children and Youth living with Lupus.

The Lupus Awareness Month Campaign is supported by committed sponsors including Jamaica National Group and Barita Investments Limited. The campaign will engage the public through a Virtual Launch on October 1 at 10 am on their YouTube and Facebook pages. The programme then continues throughout the month with video features, live media interviews and enhanced public education efforts. Additional public engagement will be channelled through social media, school-based and community-based activities such as Church Service, Put-on-Purple Fridays and a Children’s Poster Competition.

As October progresses, the Lupus community and the general public can look forward to other key events, including a special edition of the Foundation’s monthly live Q & A virtual programme, Ask The Expert Live – Youth Edition, and a family-friendly virtual event, Laps for Lupus Awareness on October 17, 2021. Medical Professionals will also be engaged with a virtual Lupus Symposium on October 31, 2021 sponsored by the National Health Fund and livestreamed free to the public.

A 38-year-old charity, LFJ is inviting corporate Jamaica and all Jamaicans to support the campaign by participating in activities or sharing information on social media. The Foundation is always inviting and welcoming assistance with raising funds to continue essential programmes and services offered to its over three hundred members and the general public. Services being offered by the Foundation include a Help Centre, monthly newsletter, educational materials and programming, support group meetings, member medical assistance and counselling, advocacy and promotion of patient-centred research. The public is invited to visit the LFJ website or social media, or contact the Centre for more information about upcoming events and activities, the work the Foundation is doing, and guidance on how to join, donate or volunteer.

As Dr. Tulloch-Reid reminds, “knowledge about lupus does save lives and everyone can support the fight against Lupus.”

###

Lupus Foundation of Jamaica is a member-based, volunteer-run charity in operation since 1984 dedicated to improving the lives and outcomes of persons with lupus through information, support, advocacy and research. To Learn more about the work the LFJ is doing, visit website and social media pages:

website: www.lupusfoundationofjamaica.orgFacebook | YouTube | Instagram | LinkedIn

or to contact their Learning Centre at 7 Barbados Avenue, Kingston 5, Phone:876-754-8458, Helpline: 876-778-3892 email:info@lupusfoundationjamaica.org For more information about this article, contact Dr Desiree Tulloch-Reid at rheumjamaica@ymail.com or 8765744954.



Miss Jamaica World Khalia Hall to join with Government and Medical Societies to support World Lupus Day Observance


Khalia Hall, the reigning Miss Jamaica World, is demonstrating the philosophy of Beauty with a Purpose as she lends her time and influence to the cause of Lupus Awareness.

Miss Jamaica World is one of several well-known personalities that have endorsed the efforts of the Foundation over the years to promote awareness about Lupus.  “I feel grateful to be able to use my platform as Miss Jamaica World to help the Lupus Foundation of Jamaica to raise awareness around this debilitating disease.” 

On May 10, Lupus Foundation of Jamaica will be joining in with lupus groups across the world in observance of  World Lupus Day 2022 under their own theme LUPUS LEVEL UP: Make Lupus Visible.  According to Dr Desiree Tulloch-Reid, President, the campaign will have an Island wide reach through media interviews and promotions, poster displays, a social media campaign and Awareness walks dubbed “Make Strides for Lupus” across the Island and will culminate in a World Lupus Day Ceremony and mini-health fair at Emancipation Park, New Kingston, on May 10, 2022.  “We will be engaging all our members, supporters, media partners, Government, community organisations, the public at large and all our online and social media to increase awareness of lupus, specifically this year emphasising the impact of lupus on the body’s organs.”  

Ms Hall will be supporting the LUPUS LEVEL Up campaign by a video endorsement for social media and being photographed in the purple T-shirt bearing the Campaign theme.  She will also attend the Foundation’s key event, a free mini-health fair at Emancipation Park, and take part in an official Opening Ceremony at 12:00 pm in tandem with the  Minister of State in the Ministry of Health & Wellness, Hon Juliette Cuthbert-Flynn who will declare the event open.

Also present at the free event at Emacipation Park will be representatives of several health Professional Associations including Medical Association of Jamaica, Dermatology Association of Jamica, Pharmaceutical Society of Jamaica and Jamaica Physiotherapy Association as well as Mandeville Regional Hospital Nephrology Unit, who will interact with the public and provide health talks and demonstrations.  National Health Fund will provide free health screening in tandem with the Diabetes Association of Jamaica.  A live broadcast on Riddim FM 102 with host Vernon Derby will also feature conversations with health professionals, volunteers and persons living with Lupus, as well as reports from participants in awareness walks and other activities across the Island.

The public is invited to wear purple on Tuesday May 10 in solidarity, to participate in local activities and make donations to the Foundation towards support services for persons with Lupus. Further information is available at the Foundation’s website www.lupusfoundationjamaica.org or by contacting 8767548458.


7 Barbados Avenue
Kingston 5, Jamaica, W.I.
876-754-8458

Helpline
876-778-3892 (Voice/Text/Whatsapp)

Email: info@lupusfoundationjamaica.org


Learning Centre Hours
Monday - Friday
10am-12pm & 1pm-4pm

Powered by Wild Apricot Membership Software