The Jamaica Gleaner: Lupus Foundation Of Jamaica Opens New Facility To Aid Persons

11 May 2016 9:56 AM | Anonymous

The Jamaica Gleaner, May 11, 2016 - In observance of World Lupus Day yesterday, the Lupus Foundation of Jamaica (LFJ) opened new offices. This is the first time that an office and learning centre of this nature will be made available to serve the needs of persons living with lupus, as well as the general public.

World Lupus Day is about bringing further awareness to the plight of persons living with the disease, noted Dr Stacy Davis, president of the LFJ, "and we at LFJ also join the rest of the world with one voice in championing the cause for persons living with lupus".

She continued, "There is no boundary to the impact of lupus. Lupus is a global health problem that affects people of all nationalities, races, ethnicities, genders and ages. Lupus can affect any part of the body in any way at any time, often with unpredictable and life-changing results. While lupus knows no boundaries, knowing all you can about lupus can help control its impact."

Davis said the opening of LFJ's new centre was a significant milestone for persons living with lupus.

"This was an important goal for the foundation that has been in gestation for more than 30 years. Now finally patients, their families and any one affected can come in and learn more about the disease and treatment options," she said.

The Lupus Foundation of Jamaica office is located at 7 Barbados Avenue, New Kingston, and is open from 9 a.m. to 5 p.m. The Learning Centre is open from 10 a.m. to 12 noon and 1 p.m. to 4 p.m. Mondays to Fridays.

WHAT IS LUPUS?

Systemic lupus erythematosus, or simply lupus, is a disorder of the immune system and one of the least known major diseases. It is a chronic (lifelong) disorder of the immune system that results in abnormal inflammation of tissues almost anywhere in the body, including skin, joints, kidneys, blood, lungs, heart and brain.

Common symptoms of lupus include fatigue (tiredness), rashes on the face and body, hair loss, joint pain or swelling of the legs. But lupus can be extremely variable in its severity and manifestations, and may produce different signs and symptoms in different persons; some persons are only mildly affected, while others can feel very ill or suffer life-threatening or disabling complications. Even for one person, symptoms may vary at different times in their lives, and there may be periods of increased or severe symptoms known as flares.

Lupus most commonly first affects young women at the prime of their lives, 20s and 30s, when they may be starting careers or have young families; however, all ages, including children and men, can be affected as well.

WHAT CAUSES LUPUS,

AND CAN IT BE TREATED?

The cause of lupus is not fully understood, but genes as well as environmental factors may both play a role. It is not cancer and it is not contagious. There is no definite way to avoid getting lupus or to predict whether you will get it, but by being aware you can recognise symptoms quickly and be diagnosed and treated early, which can make a big difference.

Although there is no a cure for lupus, knowledge and understanding of the disease is greater than ever before; and treatments now exist that can be very effective in keeping the disease under control, allowing persons with lupus to live longer and better than ever. In addition, for someone who has lupus, good understanding of their condition, adequate support and expert care and monitoring go a long way to improve outcomes and quality of life.

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Miss Jamaica World Khalia Hall to join with Government and Medical Societies to support World Lupus Day Observance


Khalia Hall, the reigning Miss Jamaica World, is demonstrating the philosophy of Beauty with a Purpose as she lends her time and influence to the cause of Lupus Awareness.

Miss Jamaica World is one of several well-known personalities that have endorsed the efforts of the Foundation over the years to promote awareness about Lupus.  “I feel grateful to be able to use my platform as Miss Jamaica World to help the Lupus Foundation of Jamaica to raise awareness around this debilitating disease.” 

On May 10, Lupus Foundation of Jamaica will be joining in with lupus groups across the world in observance of  World Lupus Day 2022 under their own theme LUPUS LEVEL UP: Make Lupus Visible.  According to Dr Desiree Tulloch-Reid, President, the campaign will have an Island wide reach through media interviews and promotions, poster displays, a social media campaign and Awareness walks dubbed “Make Strides for Lupus” across the Island and will culminate in a World Lupus Day Ceremony and mini-health fair at Emancipation Park, New Kingston, on May 10, 2022.  “We will be engaging all our members, supporters, media partners, Government, community organisations, the public at large and all our online and social media to increase awareness of lupus, specifically this year emphasising the impact of lupus on the body’s organs.”  

Ms Hall will be supporting the LUPUS LEVEL Up campaign by a video endorsement for social media and being photographed in the purple T-shirt bearing the Campaign theme.  She will also attend the Foundation’s key event, a free mini-health fair at Emancipation Park, and take part in an official Opening Ceremony at 12:00 pm in tandem with the  Minister of State in the Ministry of Health & Wellness, Hon Juliette Cuthbert-Flynn who will declare the event open.

Also present at the free event at Emacipation Park will be representatives of several health Professional Associations including Medical Association of Jamaica, Dermatology Association of Jamica, Pharmaceutical Society of Jamaica and Jamaica Physiotherapy Association as well as Mandeville Regional Hospital Nephrology Unit, who will interact with the public and provide health talks and demonstrations.  National Health Fund will provide free health screening in tandem with the Diabetes Association of Jamaica.  A live broadcast on Riddim FM 102 with host Vernon Derby will also feature conversations with health professionals, volunteers and persons living with Lupus, as well as reports from participants in awareness walks and other activities across the Island.

The public is invited to wear purple on Tuesday May 10 in solidarity, to participate in local activities and make donations to the Foundation towards support services for persons with Lupus. Further information is available at the Foundation’s website www.lupusfoundationjamaica.org or by contacting 8767548458.


7 Barbados Avenue
Kingston 5, Jamaica, W.I.
876-754-8458

Helpline
876-778-3892 (Voice/Text/Whatsapp)

Email: info@lupusfoundationjamaica.org


Learning Centre Hours
Monday - Friday
10am-12pm & 1pm-4pm

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